The Icarus Project and the Future of Mad Pride
In October 2011 DuBrul had developed a broader perspective than when I interviewed him in 2009. He wrote an eloquent statement just before I was going to submit my book for printing, and he asked me to include it. To my surprise he did not mention reducing his intake of lithium as the cause of his problems, and in one of his recent e-mails DuBrul wrote, “[H]opefully I’ll figure out a way to get off the drugs all together some day.”
Mad Pride and The Icarus Project Revisited 2011—Some Final Thoughts By Sascha DuBrul
Reading over the transcripts of our conversation I’m struck by a couple things. First of all, it’s amazing to catch a glimpse of my own thought process as my anarchist sensibilities struggled to make sense of life in the ashram. It’s been a really interesting two years of synthesis as my internal pendulum has swung closer to the middle and I’ve gotten creative about integrating spiritual practice and politics into my life. I’ve found a lot of inspiration and lessons in the history of the Human Potential Movement of the 1960s and ’70s—the incredibly fruitful intersection of Eastern spiritual practices and Western psychology that merged with the political counterculture of the times. So many of the insights and tools from this period—from gestalt therapy to encounter—were lost and discredited amidst the neoliberal biopsychiatric backlash of the 1980s. More and more I find myself drawn to engaged Buddhist philosophy and the Generative Somatics community we have here in the Bay Area that mixes social justice analysis and grounded group practices. I see a lot of potential in the slow and deliberate foundation that is being laid by our work.
But Seth, the most important missing piece for me in this conversation of ours about Mad Pride has to do with the role that trauma plays for so many of us who struggle with madness. After just about a decade of working on The Icarus Project and crossing paths with, at this point, thousands of people who identify as “mad,” one thing we all seem to have in common is that we have a lot of trauma and hardship woven through the stories we carry around about our lives. On a very personal level, it’s clear to me that my “manic” and “depressive” episodes clearly have their roots in trauma from my past—they are reactions to early experiences. My inability to grieve my father’s death as a child left me with so much confusion, anger, and despair that as I got older I channeled that intensity into what gets called mania. It’s blocked energy and over the years I’ve learned how to work with it more effectively.
It’s not a universal experience and that’s an important piece of the story. There’s a whole tribe of us that are wired in a way to have these particular kinds of breakdown/breakthroughs. But if you really believe that there is “a distinctive mad sensibility different from the normal person,” I think we need to talk about how that narrative can leave room for the roles played by societal and familial trauma. And I think we need to distinguish between the “madness” of ecstatic vision and the “madness” of psychic anguish.
Us madfolks, we can throw crazy and wingnut and mad around as terms of endearment or insults as we please and I find it refreshing to hang out with the people who speak my language re-appropriated from oppression. It’s a relief to find this oasis when we’re surrounded by a society that’s steeped in the stifling bio-psych DSM lingo of disorders and dysfunctions. In that way, I appreciate your efforts to reclaim and redefine madness in this arena of language and politics.
The LGBTQ (Lesbian, Gay, Bisexual, Transgender, Questioning) movement has made great strides in recent decades by raising awareness around queer issues (“Gay Pride!”) opening all kinds of exciting doors of societal change. We have a lot in common in our struggles against what is considered straight and normal. But it’s one thing to be proud of difference in sexuality (homosexuality/ queerness) and another to be proud of something that’s been earned through strife and suffering and/or a mix of (please excuse the clumsy mechanistic metaphor again) different wiring (madness.) This is not a cut and dry issue in my mind at all. It may be that everyone who’s diagnosed with schizophrenia is having a spiritual emergence, but I don’t think that’s an obvious conclusion to draw. I think a trauma analysis can often be more useful than a spiritual one.
Leaving alone these tangled and complex questions of spirit and material, I want to bring up another aspect of strategy: what do we want our “Mad Pride” movement to look like on the ground and in real life?
Before my last hospitalization (and around the time I wrote those last blog posts you’re quoting about the “mad ones”) I was sleeping really badly. I was having visions and dreams of the end of the world. I was isolating from the people closest to me. I was spending hours every day walking in the woods and having conversations with dead people. I often thought I was a spirit in the material world. Was I “mad” by society’s definitions? Clearly.
But more important for our conversation, was I “well” by my own standards and the standards of my community? Did our culture of “Mad Pride” help me in this case to stay healthy? In retrospect, I think the answer is no.
In the culture of The Icarus Project some years ago we developed a rough prototype of a document we call a Wellness Map (or affectionately a “Mad Map”). It’s a very practical document to be written in good health and shared with friends and loved ones and it starts with the simple (yet not always easy to answer) question: How are you when you’re well? What does wellness look like to you?
This question is followed by: What are the signs that you’re not so well? and eventually: What are the steps that you and your community need to take to get you back to wellness?
In my case, I used my “Mad Pride” to totally ignore all the warning signs that I was going off the deep end. I wasn’t being clear with myself or the people in my life about my wellness. I strongly believe that if we want to build an effective movement we have to prioritize our individual and collective health and wellness. And it needs to be way more nuanced and complex than the DSM. We need to weave this healthiness into our emerging culture. The psychiatric survivors movement [DuBrul is referring to the movement discussed in chapter 3 with which David Oaks is associated] doesn’t have such a great track record in this regard. Hopefully we can do better in the future.
I write these words as the Occupy movement has taken the country by storm and set up encampments in public squares all over the United States. Mental health is one of the major issues the new movement is grappling with as people attempt to participate in group processes, sleeping outside and surrounded by police. It occurs to me that in this instance more health and wellness and less madness might be what is needed. Working in groups takes skill and my experience of creating a “mad” community is that it is hard to make decisions if there isn’t a way for people to ground.
I’m not saying that “Mad Pride” can’t be a really useful rallying cry for the tons of people who’ve been affected by the psych system and want a new empowering narrative and a way to connect with other like-minded folks. I’m saying that I’ve personally rubbed up against it’s [sic] limitations in our movement work and I think that we need to be very clear about our intentions in using this powerful language as a way to bring people together.
So I hope this book ends up opening up some useful space for discussion in our greater community and that all the writings and thoughts you’ve put together help evolve the conversation in creative directions.
Let our Mad Pride movement be grounded in humility and kindness for each other in our diversity of life experiences, a recognition that social movements need good communicators and organizers more than charismatic leaders and messianic visions, and that the beautiful language we use to describe ourselves is only as powerful as the grounded actions we take to back up our words.
Mad love, Sascha
Sascha DuBrul raises a number of interesting questions here. I think everyone in this book—and those in the Mad Pride movement—realize that people experience trauma and that the standard psychiatric way of dealing with it, which is ignoring it and drugging the patient, does more harm than good (see the Dr. Stastny interview in chapter 1 and the discussion in chapter 10). DuBrul writes, “So many of the insights and tools from this period—from gestalt therapy to encounter—were lost and discredited amidst the neoliberal biopsychiatric backlash of the 1980s.” The socially sanctioned way of dealing with all problems in living in this society is psychiatric drugs; for those who cannot afford to go to a private humanistic therapist or live where such creatures do not exist, the only option (in the mental health system) is modern psychiatric treatment, in other words, psychiatric drugs.
DuBrul uses the term neoliberal backlash. I presume he means the backlash associated with the “neoliberal” policies that became popular beginning in the 1980s: these policies include the unrestrained pursuit of profit and the collapse of the kind of ethical self-regulation that had prevented the APA until 1978 from accepting drug company money (see discussion in chapter 2). After the marriage of Psychiatry with the drug companies there was what DuBrul called a “neo-liberal backlash” against all the therapies that had become popular in the 1960s and 1970s. As the hunger strikers wrote, “The mental health system rarely offers options other than psychiatric drugs, and still more rarely offers people full, accurate information about the hazards of psychiatric drugs” (see chapter 2).
The impact of this was particularly devastating to clients due to Psychiatry’s control of funding for mental health services by the government; as noted, after 1980 the NIMH would no longer provide any funding for places like Soteria, which did not use psychiatric drugs. Loren Mosher was fired from the NIMH. As Robert Whitaker showed, psychiatric drug treatment not only caused a variety of serious health problems but disabled the very organ it ostensibly was designed to fix: the brain.
DuBrul makes it clear that he was himself a victim of psychiatric single-vision. (This kind of approach to “psychotics” predated neoliberalism.) He saw numerous psychiatrists and therapists when he was a teenager and young adult, as he describes in his article in The San Francisco Bay Guardian, and every single one told him he had a chemical imbalance; not a single one related his mania to the trauma of his father’s death. DuBrul eloquently writes, “My inability to grieve my father’s death as a child left me with so much confusion, anger, and despair that as I got older I channeled that intensity into what gets called mania.” (DuBrul had never mentioned this in our previous meetings, as can be seen in the previous chapters in part 3.)
After six years in the psychiatric system, DuBrul had been convinced in 2002 that his emotional pain was the result of a chemical imbalance, of a permanent incurable “bipolar disorder.” Despite the fact that he grew up in Manhattan, the Mecca of psychotherapy, there was no therapist to say to him, “You are suffering because you went through hell watching your father die a slow and painful death when you were just twelve. You are not sick; you experienced a natural response. We need to talk about that and help you to mourn it.” It did not occur to DuBrul in 2002 that his father’s death might have contributed to his anguish: he did not even mention it in the article in The San Francisco Bay Guardian; I only found out about this when reading his blog entry for 2008, “And my Dad was slowly and painfully dying in front of me” (see chapter 8).
DuBrul had been misled for years and told he had a bipolar illness and that lithium was the solution to his problems. It took DuBrul over fifteen years, and several hospitalizations, to make the connection on his own—or perhaps with the help of a humanistic therapist in California—between his father’s death and his breakdowns. There had been no need for DuBrul to be put on psychiatric drugs and told he had a chronic mental disorder. I saw these sorts of things happen every day when I worked as a therapist in clinics. In this way “chronic mental patients” are created and natural responses to the crises of life are converted into symptoms of “biochemical imbalances.”
DuBrul raises another important issue: Are mad people simply mad because they have more trauma in their life? There has been a dispute about this, which has not been settled. On the one hand the trauma theory advocates argue that hospitalized schizophrenics have more trauma than “normal” persons and that “schizophrenia” can be completely accounted for by excessive trauma.
I am skeptical of this theory. Furthermore, while its proponents think this theory is the alternative to medical model, I think it tends toward reductionism. Over the past few decades investigators have discovered that the incidence of sexual abuse of female children was higher than previously imagined. For example at least 20 percent of female children have been sexually abused.1 One would expect that a higher percentage of these children would exist among hospitalized mental patients. However, I don’t believe trauma is the only variable that accounts for madness. Trauma theory advocates tend to overlook the large percentage of nonhospitalized persons who have undergone sexual abuse, which had been masked in the past.
There are studies of identical twins that found that if one was schizophrenic, there was a 45 percent chance that the other would be. The psychiatric dissidents who supported the hunger strikers believe these studies were flawed, that for example the similarity of the way in which identical twins are treated as compared to the treatment of fraternal twins can account for the higher concordance rate among identical twins (see chapter 2). There is no need to invoke genetic differences.
As I have explained in the introduction my own belief, based on reading and experience, is that those who get labeled psychotic, those who have breakdowns/breakthroughs, frequently have a distinctive type of personality. I am inclined to borrow Michael Thalbourne’s felicitous term and assert that “psychotics” tend to be more “transliminal” than normal populations and are thus more emotionally vulnerable. (It is possible that this personality type is created by environmental factors.)
Thalbourne defines transliminality as “a largely involuntary susceptibility to, and awareness of, large volumes of inwardly generated psychological phenomena.” The latter can more easily cross (trans-) the threshold into conscious awareness. Michael Thalbourne finds that transliminal personalities have a high rate of psychic, mystical, and manic experiences.2 They tend to be more creative. (Thalbourne states he is himself “bipolar.”) One could conclude that transliminality predisposes one to have “psychotic” experiences. I would draw the reader’s attention to David Oaks’s disclosure (chapter 2) that he now has so-called psychotic experiences while remaining calm, thus illustrating that the line between “schizophrenic” and “mystical’ experiences is very fine. In fact, one cannot draw a line, as Dubrul suggests, between the traumatic and the spiritual-ecstatic, because they often go together.3
Thus the so-called psychotic disorders are frequently based on a transliminal personality that is constitutionally more sensitive and more aware. As we have seen, rather than an illness, a “breakdown” in a supportive environment—such as Diabasis or Soteria—could be a regenerative process. Thus madness can be personally adaptive. In part 4, I discuss the evidence for my contention that the schizophrenic or bipolar is frequently a prophet at an early stage of development—a process that is aborted by the psychiatric system.
I was surprised to discover Anthony Stevens had propounded the same thesis as I had from a different perspective. Stevens and Price write “[C]ertain life events could switch the individual carrying the genetic predisposition into a career either as a schizophrenic patient or a charismatic prophet.”4 A plethora of anecdotal and experimental evidence supports the thesis that as The Icarus Project collective had originally asserted, madness consists of “dangerous gifts” that can be of value to humanity.
Nevertheless, despite my agreement with DuBrul about many of these issues, I still sense that our perspectives are very different. DuBrul seems to have abandoned the ideas I found so exciting and inspiring in The Icarus Project’s mission statement: the ideas that the mad have dangerous gifts and that because of these gifts they can make a major contribution to saving the planet. Ironically, DuBrul’s views sound more like that of Mind Freedom (of which he originally was critical), with its focus on a revolution in the mental health field.
There is some inconsistency between DuBrul’s theory and practice, just as there is with David Oaks. Both strongly believe in the ideal of a new order, nonviolent, anticorporate, based on equality, freedom, and fraternity. Both are (as of October 2011) very enthusiastic about the Occupy Wall Street movement, yet both seem to think the mad movement should focus primarily or exclusively on “mental health” issues: on the issues of creating more humanistic kinds of healing and opposing coercive treatments.
I agree with the need for a “healing narrative” (as I’ve made clear throughout this book), but I think it is a weaker and less expansive narrative than the messianic or utopian metanarrative. I think it is and should be encompassed by the greater messianic or utopian metanarrative. This metanarrative is not based on a fairy tale, however. Humanity is literally on the verge of annihilating itself and all life on the Earth. Mad people have seen the nightmare, and they have seen the promised land in their visions. DuBrul writes that “social movements need good communicators and organizers more than charismatic leaders and messianic visions.” They need both, as I’ve tried to show. Right now more than anything we need many charismatic spokespersons whose actions and words are informed by a messianic vision of a collective spiritual life on Earth. (“Let the dead bury the dead and follow me,” Jesus said.)
DuBrul is right, of course, that we need new ways of healing the wounded self. However, this is not a sufficient basis on which to build a movement of the mad. However important, it is too niggardly a goal in the light of the overwhelming magnitude of the problems that threaten our existence as a species. The political and economic elites that run the world are committing ecocide, and if we will not be around to experience it, our children will. Scientists leave no doubt that if we do not reverse the trajectory, the ravages of global warming will create millions if not billions of tragedies this century. We are staring into the abyss of doom—a doom our fellow human beings, the corporate elites, have imposed on us all.
It remains a fact that the problem of the world impinges on the psyches of our most psychologically vulnerable population in the United States—the mad. One of the most therapeutic things they can do for themselves is to bring their gifts to the new commons of those who are fighting to save the world. We need their visions, their contribution to a narrative of redemption, their sense—as Serine put it—that God has called them to help save the world. We need prophets who will call humanity to remembrance, we need messiahs who will remind the normal ones that they too have dreamed of paradise, of the homecoming. Perhaps the mad can evoke chords long forgotten because they know how to talk naturally in our native tongue—in the language of dreams, of madness.
What is the future for The Icarus Project? It has chapters all over the country, but can it contribute not just to helping the mad but healing the planet? In 2007 The Icarus Project published Harm Reduction Guide to Coming Off of Psychiatric Drugs.5 It is available free online at the TIP website, and it’s a valuable resource. Ashley McNamara—now known as “Jacks”—has not published anything on this topic since then. DuBrul and McNamara are both in the Bay Area now; DuBrul moved there in 2009. They have traveled together to promote the documentary about McNamara’s life and artwork, Crooked Beauty, an extraordinarily moving documentary. The film is about her artistry (she is a painter and sculptor as well as a writer) and her emotional pain. It undermines the stereotype of mad people as helpless and pitiful. Unfortunately, it evades the topic of psychiatric drugs, but that was the decision of the filmmaker.
In 2007 McNamara had some sort of conflict with some of the people in TIP. She has not written anything on the TIP website since then. But she is active in the Bay Area Radical Mental Health Collective. I don’t know if she, like DuBrul, has revised her views on Mad Pride. But both McNamara and DuBrul were the cocreators of the new Mad Pride narrative. She had big dreams for Mad Pride. McNamara attributed her proclivity to imagine grand possibilities to her own madness. In a brilliant essay “Drawing New Lines on the Map”—included in the first book The Icarus Project published—she wrote (the emphasis is mine), “We are people with a dangerous gift that sometimes grants us the vision to see new possibilities and to draw new lines on the map. Drawing new lines on the map requires free access to our imaginations. Drawing new lines requires the courage to resist authority—and ultimately the solidarity to do it well.”
After discussing the parallel between shamans and mad people, she concluded,
Is it possible that the very pieces of ourselves that get labeled pathological could also be like keys in the dark, their edges barely glowing, like silver question marks too easy to overlook? After all, would I [a so-called psychotic] be making the imaginative leaps necessary to write this piece you’re reading if my mind wasn’t prone to unifying visions, dendritic and unusual connections across vast swaths of thought, and the “ delusions of grandeur” that get labeled symptomatic of disease but also allow me to have a wide open vision that reconsiders the role madness can play in our culture and imagines big possibilities?6
This is what I call the messianic-redemptive vision. To have a wide-open vision and to imagine big possibilities—for each individual, for Mad Pride, and for the Earth.