Note: Index entries from the print edition of this book have been included for use as search terms. They can be located by using the search feature of your e-book reader.
abandonment, See also attention; isolation
able siblings. See sibling(s) acceptance
accommodation
achievement(s)
acknowledging all children’s
need to achieve, See also approval
adolescence. See relationships; teen issues
adult siblings, See also specific topics
difficulties for
discovering own needs
gaining understanding
making sense of the past and moving forward
adult years
age factors, See also birth order
agencies, checklist for
aggressive behavior
fear of
tolerance of
wish for disabled sibling to disappear
aloneness. See isolation
anger, See also unfair treatment and sense of unfairness
in adult siblings
denial /internalization of,
See also depression
expressing
as phase in grieving process
toward parents
anxiety, See also fear(s)
approval, need for, See also achievement(s)
artistic expression
Ashford House
attention
“acting out” to get
being perfect to gain
fear of or guilt over taking too much
giving children time
lack of time with parents
needs for and lack of
wishing one were disabled in order to get
autism, See also cases (Kerry, Lenore, Lily, Stuart Silverstein)
awkwardness, See also embarrassment
behavioral problems. See aggressive behavior; cases (Claire, Helen)
bereavement groups
birth order
when sibling is the younger child
blame, See also guilt
Borchere, Debra
care given by sibling, acknowledging and valuing
career choice
caregiver role
caregiving and responsibility
“brother’s keeper”
finding the positives in
growing up fast
for sibling later in life
Carenet
caring for disabled sibling
cases
Carly
Carol
Caroline
Cassie
Cathy Freeman (and Anne Marie)
Charlie (and Lucy)
Claire
Debra Borchere
Eliza
Emma
Fran
Gina
Guy
Helen
Holly Lu
Jane (and Nick)
Jordan
Josh
Josi
Joy (and Sally, Rose, and Catrina)
Julie
Kerry
Lenore
Lily
Marie
Mark (and Sam and Dean)
Marsha
Meagan
Missi
Nance (and Ashley)
Rachel
Renee
Sally (and James)
Stephen (and Michael)
Stuart Silverstein (and Marc)
Susan
Tara
Tim
Vera
Victoria
cerebral palsy. See cases (Cathy Freeman, Emma, Jane, Josie, Mark, Marsha, Vera)
chronic illness. See cases (Tara) codependence. See giver, having to be
cognitive-behavioral techniques
communication. See also self-expression
encouraging open
parental
compensation
competence, sense of
parents regaining
confused feelings
control, emotional, See also competence
coping skills
counseling
family
individual, See also therapy
Cronin, Peter
dating. See relationships (and dating)
deafness. See cases (Gina) death of disabled sibling
fear of
decision making. See also life choices
involving siblings in
denial
depression
developmental disabilities. See cases (Claire, Marie)
disability(ies)
attractions of a
multiple. See cases (Caroline, Holly Lu, Joy, Stephen)
nature of
discipline, See also unfair treatment and sense of unfairness
Down’s syndrome, See also cases (Fran, Susan, Victoria)
eating disorders
embarrassment, See also awkwardness
emotional disturbance. See cases (Claire)
emotions. See feelings; specific emotions
encephalitis. See cases (Julie)
epilepsy. See cases (Carly, Helen, Joy, Lenore, Nance, Sally, Tara)
estate planning
failure, fear of, See also perfectionism
fair, being, See also unfair treatment and sense of unfairness
faith, loss of
family-centered care
whole-family approach
family(ies), See also parents/primary caregivers
having contact with other
problems not recognized within
questions to help think about needs of
size. See sibling(s), number of
starting one’s own
support from within
favoring disabled sibling. See unfair treatment and sense of unfairness
fear(s)
of being identified with sibling
of developing same disability
sharing information to alleviate, See also information
of violent behavior, See also aggressive behavior
and worries
Featherstone, Heather
feelings, See also specific emotions
acknowledging siblings’
dealing with
denial of
discussing
expressing, See also self-expression
labeling
lack of opportunity to talk about negative, See also secrecy and hiding; silence
suppressing/internalizing, See also isolation
Fleming, Sara
fragile X syndrome. See cases (Debra Borchere)
freedom, See also independence
Freeman, Cathy
friends
choice of
difficulty talking with
embarrassment inviting them to one’s home
reactions to sibling
support from
talking with
Fullwood, Deborah
future, See also life choices
making sense of the past and moving forward
planning for
gender differences in coping
genetic counseling
giver. See also caregiver role
having to be
Glasberg, Beth A.
God, disabilities as the will of
grief, See also death of disabled sibling; depression
of parents, See also parents/primary caregivers, impact of disability on
recognizing
of siblings
stages of
guardianship
guilt
in adult siblings
entering helping profession to appease
over belief that one has caused the disability
of parents, See also self-blame
survivor
Harris, Sandra L.
hearing impairment. See cases (Gina)
heart problems. See cases (Caroline)
helper role. See caregiver role
helping professions
identification with disabled sibling
imitation of disabled sibling
independence, See also freedom; self-reliance/self-sufficiency
encouraging
having some space
lack of
outside activities and interests
information
accessing
resources
sharing
institutionalization
intellectual disabilities. See cases (Carly, Guy, Josie, Julie, Lenore, Marsha, Nance, Rachel, Sally, Tim)
Internet-based discussion groups
isolation, See also loneliness
separation from parents and feelings of
jealousy, See also anger; attention; unfair treatment and sense of unfairness
journal of life
journal writing
Kübler-Ross, Elisabeth
labels
derogatory
using
language, using
life choices
choosing a career
having children
where to live
listening
making sure parents feel listened to
to what siblings say
Lobato, Debra
loneliness, See also isolation
loss. See also death of disabled sibling; grief
of faith
losses for siblings, acknowledging and discussing
loyalty, conflicting
mainstreaming children with disabilities
marriage, See also parents/primary caregivers; relationships
impact on
mastery, sense of. See competence
McKissock, Dianne
meaning(s)
creating more positive
finding, See also God
finding new
media portrayals of living with disability
mental-health prevention
mental health professionals. See professional support; service providers; therapy
mental illness. See cases (Claire, Guy)
mental retardation. See cases (Eliza); intellectual disabilities
Meyer, Don
mourning. See death of disabled sibling; grief
moving away
muscular dystrophy. See cases (Renee)
name calling
neglect, See also attention
when the needs of others come first
organizational policy and approach
organizations
collaborating with other
disability, See also professional support; services; sibling groups
others’ reactions, See also friends; staring; teasing/ridicule
preparing siblings for
overprotectiveness
paralysis. See cases (Helen)
Parent to Parent program
parental expectations
parental role, taking on, See also caregiver role
parents/primary caregivers. See also family(ies)
addressing the needs of siblings
communicating with each other
difficulties talking with
distancing themselves from sibling
feeling listened to
identifying own needs
identifying sibling’s need for support
impact of disability on
listening to siblings
making time for self and partner
as models
planning for future
relationship with
support from other
supporting
supporting siblings
talking with
watching child’s behavior
watching own behavior
peacemaker, having to be
“people pleaser,” role of, See also caregiver role
perfectionism, See also under attention
play
preschool
prevention
primary caregivers. See parents/primary caregivers privacy
privileges. See unfair treatment and sense of unfairness
problem-solving skills
professional support, See also services
professional training courses, checklist for
professional training programs
questions, answering
rejection
relationships (and dating). See also marriage
as catalysts
choice of partner
impact on
talking with partner
relatives, talking with
religious beliefs, See also God
religious community
resilience
resources, accessing appropriate
respite care
retardation. See cases (Eliza); intellectual disabilities
Sally’s Story
school
siblings at same
school-based approaches
secrecy and hiding
security, feeling of
seizures. See also cases (Joy, Tara); epilepsy
first
self-blame, See also guilt
self-consciousness. See embarrassment; teasing/ridicule
self-efficacy. See competence
self-esteem/self-worth, See also neglect
regaining
self-expression. See also feelings, expressing
steps toward
self-indulgence, fear of or guilt over
self-reflection and self-awareness. See adult siblings
self-reliance/self-sufficiency, See also independence
service providers
as advocates
problems not recognized by
showing interest in siblings
supporting siblings
services. See also professional support; support services
accessing appropriate
why siblings don’t access
shame
sibling groups
benefits
encouraging attendance at
setting up
Sibling Project
sibling(s), See also specific topics
being a
factors influencing adjustment of
helping younger
identifying needs of
impact on
number of
positive aspects of being a
reactions to disability
talking with
talking with other
told they are lucky
Sibshop model
Siegel, Byrna
silence, See also secrecy and hiding
Silverstein, Stuart
single sibling, See also sibling(s), number of
skills to deal with stressful situations
social functioning of siblings, See also relationships (and dating)
social networks
social support
informal
strengthening and improving network of
society’s message
space, personal
special attention. See attention special needs, meaning of
specialness, feeling of
helping all children feel special and valued
spina bifida. See cases (Carol)
spoiling disabled child
staring, reactions to people’s
STOP, THINK, DO model
support from outside family, See also professional support; Sibling Project
emotional
from friends and extended family
from other parents
support groups, See also sibling groups; Sibling Project
support mechanisms, helping sibling identify formal
support services. See also services
access to available
teacher role, See also caregiver role
teachers
ways of supporting siblings
Teasetips Web site
teasing/ridicule
dealing with
siblings joining in
teen issues
teen years
therapy, See also counseling
time. See also attention for oneself
training. See professional training programs
understanding
gaining
need for
unfair treatment and sense of unfairness, See also attention; fair, being
withdrawal. See isolation
writing about one’s experiences