EULOGY,
Esther Earl’s Funeral, August 29, 2010

by Wayne Earl

Thank you, Jim and Julie Salmon, and thank you Pastor Jim and Medway Village Church, for opening up your hearts to us; your home to us. Esther would have been so happy to see all these people, to know that she had so many friends that loved her. And she sang right from this stage, she was in the choir, and she enjoyed many good songs in this place.

And so, you may say, well, “Why are you up here making these comments, I mean what do you know?” Well, I got the front-row seat. And I got to see her closeup. It wasn’t just box seats; I was in the dugout. I was right with her in her life. But more than that, I got to love her. And I got to be loved by her. And we got to love her. We got to be loved by her, touched by her brilliance.

And then, you know it’s not coincidence that this was her name: Esther Grace. It’s the only name we had for her. I mean if she had been a boy she might have been Herman Mudd or something, but she was a girl so her name is Star. I always called her Star. I always called her Estee. And Grace was just the reminder we didn’t want to forget that it’s all about grace. It’s all about the fact that we don’t deserve these good things, but they’re ours anyway, to enjoy and to share and to delight in. She was a star! A star illumines, right? I mean when we see the light it’s gone out. But it brightens something; in this case it shined its light—her light—of grace.

She helped us to see our flaws, but you weren’t overwhelmed with that. She helped us see our potential, our life, what we could contribute . . . our awesomeness, right? Some relationships are bad for you, you want to get out of there as soon as you can, and others are good. You like them, you like them to stay that way. And others change us, and we’re never the same. We walk away and we say, “Something happened to me, I am different . . .” The way I describe it is that I want to stand a bit taller, I want to serve a bit deeper, I want to love longer. I want grace to permeate my life. She did that. She lived. Esther lived! Sixteen years, but she lived well and she lived deeply and she was alive!

She loved to go fast, right? From the time she was small she was running and that hair was just flying everywhere. And it was just so bright and cheery and she loved things . . . I remember we were in Saudi Arabia; she was just four years old and she was on one of those motorcars with four wheels and she would take Evangeline ripping around the sand and up and down the streets—well sands—of Arabia.

She loved to create things. You’ve seen her artwork online; you’ve seen it up close. She was just in the middle of creating this wonderful game for Abraham and she didn’t know where the game was going, but he thought she did. She loved her vlogs and all of those cards and texts, and monkey bars and playing in the snow and the beach; everything a kid loves to do.

She had a tremendous sense of humor. Were you touched by that? She was funny; she was funny and she was quirky and different and unique and alive. She liked chocolate milk, all kinds of food and culture, video games, colors and scents and people from different cultures. She liked . . . just the other day she was looking up . . . she said, “Dad, look at this, a website devoted to words in the English language that we no longer use.” She described them for me. She said, “Maybe I can just string them together and make a paragraph or a sentence out of words we no longer use?” That’s where her mind was.

On her Facebook she has a list of things she likes; you know, the ‘Happy dance’ by John Green, Skittles, and Wizard rock. You can see it—the list goes on and on. She liked boys. When she was sick and various friends would visit and crawl into bed with her sometimes—because she was, you know, she needed that connection. But one day I walked in and saw Arka next to her and there was a girlfriend on the other side and I said, “You know, if I ever caught a guy in bed with my daughter, that would be it, but I’ll be graceful this one time.”

She never kissed a boy (she said). But I was reading her journals this week, hmmm. And she, uh, where’s Alexa? Okay, Alexa got her connected up with somebody named John and this John and Esther went off into the bushes at eleven years old, or whatever, and she said that was her first kiss. But then Alexa came back and disturbed them. That was a good thing.

We got to love her. We got to be loved by her. She also loved, loved so well. She loved so well and so deeply. She was passionate about all kinds of things, and passionate about, in Saudi Arabia, about stray cats. She and her sisters would bring in these abandoned cats that were just a mess of fleas and bugs and who knows what else! And, in fact they would say, “Dad, can we keep them, can we keep the cats?” “Yes, you can keep them outside, far away.” She grabbed this big empty bottle of beetles and she filled it, she and her sisters filled it up with bugs and they came into the house and they said, “Mom and Dad watch” and they poured them on themselves and watched the beetles crawl all over them. “Isn’t this cool how they crawl all over you?!” We were not humored.

She loved causes, she loved things that mattered. I didn’t realize this, but she had on her wrist—I’d seen it before—but I didn’t know she still had it on, but she passed away with a “Save Darfur” [wristband] that she had been wearing for a very long time. I don’t know, maybe a year, and also the wristband that was made for her here. She loved her friends, she loved her friends, and she had so many for someone who was housebound and didn’t get out.

She recently started this advice-opinion giving column. People would write her, they would say, “You know I’m struggling, my parents are really getting on my nerves, any advice for how to live with insufferable parents?” And she would write back, “Well I know what you mean, let’s talk about it.” And some of you have seen those entries; she did them personally for each person that would write in. It was becoming more and more common for her to get those kinds of questions.

She loved nerdfighteria and the last eighteen months that brought her alive. Are there any nerdfighters here today? Come on! There are those over here, okay, all right. If you loved Esther, then you are now an honorary nerdfighter, okay? She was a Welcomer. She believed there were no outsiders. She said everybody should be welcomed, and they were welcomed into her heart and into her room. I mean, she knew the difference between brokenness and people who were not real and all of that, but she just invited you in. I would just be amazed at how welcoming she was. It didn’t matter if you were confused or depressed or perfect people who were confused about their sexual identity; whatever it was, she said come on in, I want to love you. I want to be your friend. I want to care for you. I want to understand. She didn’t believe that there were insiders and outsiders.

And she also had this unique capacity for making you feel like you were the most important person in her life. You know, I could say I was the most important person in her life until somebody else walked into the room. And they just went out feeling great. And it wasn’t that she agreed with you. I’d walk in and dump my stuff out and say, “Oh, this is driving me crazy . . .” And she would listen. I realize now that she never said she agreed with me. But she made me handle it. And that’s what grace is: being there. She was there.

She loved her family. She loved Abe. You know, it was easy to do, because we announced his birth from this pulpit. Remember that? We were pretty old then (speaking for myself!). We announced that we were going to have another one, which was a surprise to everybody. You know miracles still occur! So what do you do with a fifth baby? Well, you give it to your daughters. We don’t know what to do! We don’t have the energy so Mom went to bed and I went to work and that was it. You raise this kid. So Evangeline had him for the first year and then Esther the second year when he was one to two. She took care of him, and she homeschooled, which meant, “Would you take care of the baby while I get back on my feet?” She loved Abe and you can see that. You can see that online. You can see that if you knew them together.

She loved her Abby. She thought you, Abby, she thought you were perfect, smart, and witty. And I think if there’s someone she idealized most . . . you know, when she thought (I close my eyes and think, “man, who are those models out there, people I want to be like,” I think of Esther)—she thought of Abby. She said, “Wow I want to aspire to where Abby is.”

She loved Evangeline. Evangeline was there. Evangeline was there when she passed away. And her last conversations were with Angie. She thought Angie was the person that she most wanted to impress. Because Angie was so cool, Evangeline was so cool; she thought she was perfectly beautiful. She was absolutely right. She didn’t like fake people; she didn’t like doing mean things. But sometimes she did these sneaky things. This one time a few years ago when Evangeline, umm . . . when boys were still taboo, Esther created an online account for somebody named Chris and “Chris” began to e-mail Evangeline saying, “Hey I saw you at school and I think . . . ”

How do I know about that? Yeah. Parents, they know all these things. There are no secrets and if there are secrets you only have to wait till weddings and funerals and they all spill out.

So yeah, “Chris” would write her and say, “Evangeline, I saw you at school; you’re so cute, maybe you could leave a note for me?” Esther was just tricking her. Well, when Evangeline found out, of course she was livid and Esther wrote in her diary, she said, “I cannot live with Evangeline mad at me.” And then they worked it out.

Then Graham of course, you know, he’s wandered again. She loved Graham; she led him though the first five years of his life. Graham couldn’t speak very well. Some of you remember that. Graham would come into the room and say, “Subalooga-de-ba-laba-be-abagaba” and we’d look at each other—my wife and I, and Abby and Evangeline—and say, I don’t know. Then Esther would say, “Oh, he wants spaghetti with ice-cream and liver and onions on the side; a little bit of feta cheese in there and some sparkling cider to wash it down.” She knew exactly what he needed, and what he wanted and she was there for him; a special relationship all the days of her life.

And then, for my wife, for Lori; nobody served her as well as you did and you were there night and day, usually not complaining. I helped out a little bit. But no one served her better. Somebody said to Lori recently that she did what none of us could do and Lori said, “No, no . . .” she did, “what every one of us can do” because we all have the spark of life, right? We are all alive; we all have something to give.

She not only lived well and loved well, but she died well, you know, which is no surprise. She knew when to go and it was way too soon. You know how people hang around sometime and you’re like, “Weeellll, you know, I see that it’s getting late now and I believe the last train . . .” and then others, you’re like, “Yeah, well I guess it’s about time to get going.” And others you think, “Nooo! What are you talking about?! You can’t go now.” We didn’t want her to go now. We had things to look forward to, so many things to look forward to, so many friendships that were blossoming, so much of an impact that we saw; that we could feel. Angie was with her and we didn’t know it was the last moment; we didn’t know it was the end. Her very last words, her very last words were, “I’m going, I’m going.” And then she fell asleep and we were with her during those hours that she was sleeping.

I think about the things she’s going to miss, and I can’t, I can’t get my head around it. The things, the anniversaries, the first things . . . the first time I’m alone. I don’t know what that’s going to be like. The first time when I see someone her age and I need grace and we need grace to bear up under it. And God promises that to us, to give us that kind of Grace.

Esther didn’t have regrets; some of us live with lots of regrets, you know. “Oh my goodness, I regret the shoes I wore today! I regret that I just yawned! Oh no! I regret that . . .” Esther was like, “Pfft, Dad, this is life, let it wash over you.”

She died so well. I used to say to her—in the last year especially—I’d say, “Esther, when you . . .” (I believe, when we’d talk about heaven, I’d say I believe that life is more and she agreed and she said . . . she believed that . . .) I said, “When you die, would you just give me some kind of sign? Let’s just work that out now so that I don’t have to wonder if I got this wrong. Can you just tell me somehow, give me a sign?” And I had my last conversations with her, and I told her I loved her and I said this is very serious, but one of the last things I said to her was, “Esther, let me remind you, if you’re going to go home tonight, would you just tell me?”—we had talked about this a lot—I said, “Maybe you could open your eyes and tell me that you see the angels and that you see heaven.” This was a yearlong conversation; we never hid from death; we embraced life.

And she fell asleep. For all those hours we were by her side knowing that she wasn’t going to come back. Then finally, right at the end, she opened her eyes, and she breathed out her last. And I just said, “Esther, you’re going home! I am so happy for you!” And then she was gone . . .

But our relationship with Esther doesn’t stop there. You think . . . the relationship goes on. It goes on! Esther’s in your heart. Your relationship with her is unique. It goes on, it continues. If she isn’t able to guide your life in terms of looking to her as an example of how we should live; if you don’t have that hope in your heart that there’s some other place, some other meaning. Believe me, Esther’s life was almost entirely this world focused, as it should be. She believed that we are called to be here, to make a difference here, to be alive here, and to love here well and leave heaven with God. Let him take care of those details. She had her eye there too, she knew. But she believed in making a difference now. That’s the only way, it seems to me, to live a meaningful life. She did justly, she loved mercy and she walked humbly with her God.

Dr. Seuss said . . . (I figure I need to quote an authority here), Dr. Seuss said, “Don’t cry because it’s over; smile because it happened.” Right? I don’t know about the first steps in a geography of loss, and I know that it’s unmapped. I know that we all have to go by ourselves, but there’s something bigger than us at work here. And Esther represents that and she’s lighting the path and God is using her in amazing ways. The Star lit up over our hearts and she poured out Grace.

Now, is the story over? Come on as a congregation:

I got a front-row seat to her wonderful life. She’s my Star. She’s my muse. My kids know that. I’ve always been easy with Esther. She disarmed me. She brought out the best in me, she reminded me of the worst, because I could see it so clearly, but then she welcomed me into her heart. And so many times, like Monday, I said, “Esther, I don’t know what I’m going to do without you when you go. I don’t know how I can get along. What am I going to do?” And then I just expected her like always to say, “Well, Dad, let me tell you; here’s what you do, A B C.” But she said, “Come here.” She just hugged me; held me close, didn’t say anything, didn’t say anything. And I realize now that that was . . . that’s the best way to love someone. Hold them close, know that you’re loved, let it wash over you.

We got to love her and she got to love us. Amen?

Monday, September 20, 2010 12:57 AM, EDT

“I will say you were young and straight and your skin fair

And you stood in the door and the sun was a shadow of leaves on your shoulders

And a leaf on your hair”

“Not Marble Nor the Gilded Monuments” by Archibald MacLeish

Friends,

As you might imagine, we are missing our Star. In some ways, each day seems harder than the one before. There are so many sad moments: Abe asking who will finish the amazing game she was making for him; Graham wondering how he can possibly navigate the new season of Doctor Who without her; Abby and Angie missing late night talks and texts; Lori, and me, too, sobbing, railing against the unfairness of it all. The reality of her passing pushes hard against our need to keep her with us. A phone ringing, especially at night, can pierce the heart as she would sometimes call from her bed to come and adjust her oxygen, or remind us it was time for this or that med. We go to bed with difficulty and pray hard asking not to be awakened at 3 a.m. in a panic. But it was so easy to love her! And “love is stronger than death” as the Bible says which eases the pain a bit.

I loved to read poetry to her. She applauded my enthusiasm and made me feel pretty smart! I dedicate this poem to you, Esther Grace.

“I love the sea.”
TOPSAIL ISLAND, NORTH CAROLINA, 2008

 

 

Saturday, September 25, 2010 1:49 PM, CDT

Friends,

Just got word about Esther’s organ donations. How amazing that two people can now—literally—see again because each received one of Esther’s corneas! A man in Ohio and a woman in Maryland now see the world through Esther’s eyes. Imagine that! She continues to give sight and light. When she learned that none of her other organs would be used (because of the cancer) she was saddened. However, she did give permission for an extensive autopsy to be performed (it was). This was a real gift to cancer research because little is known about the spread of cancer in a girl who goes through puberty while being treated (as she did).

She was an amazing, courageous, other person-centered, young woman. If she, as a sixteen-year-old teenager thought ahead and felt so strongly about this, then so should we! I know a gentleman in Ohio and a lady in Maryland that would agree.

Check out: http://organdonor.gov/

—Wayne

 

 

Saturday, December 4, 2010 2:50 PM, EST

Friends of Esther,

Thank you so much for continuing to honor Esther’s memory through your meaningful Guestbook entries here. Sadly, this wonderful meeting place must now come to a end. If you’d like to add another comment or two, you have a few days left to do so as we will be closing this site before Christmas. However, after that, there are several ways that you can continue to keep up with all things Esther. We’ve just begun a site dedicated to our new foundation created in her memory. This organization will provide resources to cancer patients and their families as well as fund projects Esther would have loved. Go to facebook and check out: This Star Won’t Go Out.

Of course, Esther has YouTube and Facebook pages which are still available to view and comment on (see the links section on this site). We also have a YouTube channel (go to YouTube and search: wayneandloriearl) where we have been posting new videos of her. We have hours of our beloved on tape and hope to edit and share more of her creative spirit long into the future.

O friends, you cannot imagine how we miss our Star!

She is constantly in our thoughts and dreams. We wake each day and wonder how anyone could endure such insanity. Our kids are so young and their lives will be less breezy without her. Abraham will never really remember her. On Friday, we ordered the tombstone that she, herself, picked out. Yes, she’d be okay with what we said but what kid should ever choose such a memorial? We carry a perpetual sadness. Was it worth it? I can’t believe you’d ask such a question! One minute with Esther was worth all that any pain can throw at us. Sixteen years beside such a soul was a privilege, the greatest of honors. Watching her unroll a daily patchwork of grace left us inspired and humbled and very, very proud. She was regal but also completely in the moment, “wickedly awesome.” Estee walked on earth gently and deeply. She loved well and without exception. Her life is her true memorial, a living monument that will outlive us all.

With Deepest Appreciation for Your Support of our Esther Grace,

Wayne & Lori

 

 

Sunday, December 19, 2010 9:52 PM, CST

Such Grace!

This little book has now come to its natural end. Esther really enjoyed your many kind expressions of encouragement. Thank you for that. You helped to make her struggle, and our part in that, bearable. We are convinced that love never dies, that it transcends anything that may come our way! We have memories of an amazing human being and an abiding hope that this is but a temporary separation. She loved her family and friends with such grace. It was easy to love her, too. Life was easier for everyone with her here.

Thank you for loving our Star!

Wayne and Lori

MAY 15, 2011
Wayne’s blog

by Wayne Earl

“Love is Stronger than death.”

—Song of Songs 8:6        

Hope is the thing with feathers

That perches in the soul,

And sings the tune—without the words,

And never stops at all

—From “Hope” by Emily Dickinson

Dear My Star,

I finally went to the cemetery earlier today to see you. In such places, I wonder, is anything more powerful than death? Spring-time says yes, and just this week thawed the ground enough to allow the installation of your tombstone. And it is perfect. The Red India granite stone is regal, yet welcoming, just like you. You chose it well even if it is the second most expensive stone on the market! I was surprised (and relieved?) to see that you weren’t there. This concerned me as I’ve been accustomed to meeting the dead in cemeteries.

But you were there. And yet, you weren’t. If there is a there, there, then you are, there (whew!). Mystery. I took the first photos of the site for your friends and even recorded some of my thoughts a la Esther, on your Flip camera! My comments were totally unrehearsed except that I’ve been having similar conversations with you all along over these, long nine months. I know you thought I was your friend but I’m really just your dad and I’ve been worried that you might be lost somewhere, in trouble somehow. I have had nightmares but I cannot dream directly about you and you know what a dreamer I am. I want so much to see you! I can’t go into a store without thinking, “This would be excellent for Star.” You were so easy to buy for and so grateful for anything I brought home. “Oh, a tomato! How thoughtful, Dad. That’s perfect.” “Awesome! I have never heard of the ‘Infinite and Dreary Chronicles of Drooling, Alien, Sumo-Wrestling Babies’ but, hey, can’t wait to start reading!” Many times I have wanted to tell you about my day or get your advice or watch the newest Doctor Who episode with you (you’d love them now!). No one around here likes espresso. Someone said you’d now be forever 16 but I don’t think of you that way. To me, you are, at once a chipper five year old holding her new star pillow and an ancient bodhisattva-like wise young woman listening, blessing, ever ageless.

What does one do when a great party ends? Clean up? Relish. Remember. Is that enough? Esther! One young woman got a tattoo with a star and ‘This Star Won’t Go Out’ printed right on her wrist! She put it there because that’s where the cutting starts and, now, with such a reminder, literally right in front of her, hope has enlarged, self-harm is diminished. People are talking about you and are inspired to overcome all kinds of things in your memory. I understand that. You were a burden sharer and burden bearer. But we needed you here. I need you here, now. If I had a wish, it would be to see you, but, if I could draw you up from the underworld, you’d be horrified to think I’d used my wish on something so trivial! Still, I am angry that you are gone and I guess that means I am in denial. So be it. I am a denier, then. This is what I deny: death does not win (said with an undignified small d). Love is Stronger. Love and hope are conjoined, if you separate one, you kill the other. If hope survives then love endures. Where even a sliver of love exists, the thinnest of hopes has room to grow.

I left the cemetery and headed straight to the tattoo parlor. “Love is Stronger than death” has been etched on my heart for some time now so I’ve decided to make it official. That phrase, along with your name, “Esther Grace” and a shooting star, will soon appear on my body for all to see. Perched where I am, that’s my understanding of your final, resting place. It ain’t final.

Love,
Daddy

Little Sister,

A life is not meant to be half lived. It is meant to be fully, wholly embraced. If you want to make a change in the world you have to be strong. You have to take chances. You have to persevere. Sometimes you must blindly go in a direction that you may be unsure of, but one that you have faith will lead you to the right place.

This is what you have taught me, Esther.

I feel you around me at times, and it gives me strength that what I am doing is something you believe in. You said that you looked up to me, that you admired me and believed that I could do anything. But I always looked to you for courage. I needed you to tell me that who I want to be, and what I want to do, was the right path.

When you passed away, a part of me did too. My strength, my hope, vanished. How could I make a difference in the world when my best friend, my soul mate, my confidant, my support, a half of my heart, was gone? Everything went blank. A fog descended and I could not breathe. My body became heavy, my movements stunted, I could not find my way out.

And then I planted a flower.

This, I could do. This tiny seed I could bring life to. I fed it, I watered it, I watched it grow, and one day a sunflower bloomed forth. I realized that with life comes death, and with death, life. It is a cycle that we are a part of. I knew that you were there, showing me how beautiful things can be. A flower bloomed and the fog disappeared.

I knew that I could not improve the world by missing you, alone. So I breathed. I breathed through the clearing in the fog. I breathed away my anger that you were gone. I breathed away the heart-wrenching sorrow that I would never again speak with you, hear your voice, sit by you and look into your eyes. As I breathed out my pain I felt a peace settle into my lungs. The easing of the pain was making room.

I looked at the sunflower, and I felt you standing next to me, holding my hand. I blinked and you were gone, taking away my sadness and giving me hope. I can give life. I can bring color and beauty into this world.

I now carry you with me; you occupy the part of my heart that broke when you died. But dying is part of this cycle, this cycle of life, and while I am here on this Earth, in this temporary place, I want to do everything I can to encourage beauty and life.

This is what you have taught me, little sister.

—Evangeline
AUGUST 2013

Dearest Est,

I freaking miss you, dude. Things have been sort of, foggy, since you left us here on Earth. It’s lonely sometimes without ya. I don’t have you there to e-mail or text at 2 a.m. The prompt, genuine reply I would always get. So honest and real. It was easy to hear what you had to say, and to understand what you meant in the advice you gave. The way you would just look at me and say “Abby . . .” and I would know what you were thinking, and that you were right, obviously. I miss just talking with you. Telling you what’s going on, rambling about our boy or family troubles. Telling each other what was going on in our lives in whatever crazy country we lived in at the time. We lived apart so much of the time, but you were always there, always in my life, and I was always in yours. I really miss those nights of endless online games we’d play sitting across from each other in the same room. The hours of listening to music and playing Yahtzee until four in the morning. I miss all the laughing, and all the love. Lying in bed with you with the whirring of the oxygen tank close by, watching whatever TV show we were into, probably Gilmore Girls. And your kitties were always there; the connection you had with them, and with all animals was inspiring. Speaking of cats, did I tell you, I named my car Blueberry, after the infamous marshmallow white cat of yours, of course? She makes me think of you.

I miss the way you love and appreciate all the small things, and all the big things, around you. How much you love your family. I don’t love as easily and as big as you could. But I strive to be more like you in that way each day. You love with such ease. Such genuine kindness and acceptance. I see how simple it is. Maybe you were so real and honest because you knew you were leaving, it came naturally because of the cancer. Through re-reading all your e-mails and letters from before you were sick, I know that was just the way you were. You were a lover. A giver. I know it’s easy to talk about someone who has died so positively, but honestly, I don’t remember anything negative about you. Ha.

I wanted so much for you. I wanted the good things and crazy things and awesome things this world has to offer each of us. Your time here was cut too short. You would have been such a huge blessing here on earth. Done such awesomeness. You totally did, actually. And you continue to inspire hearts, which is truly special. For us especially; to see your whole life and story and love alive and growing through so many. It is natural and obvious that you are such an incredible influence. It shines through your life story. You’re still living strong, my dear. It’s too insane for my little human brain to grasp what a huge audience you’ve already captured. So incredibly cool. I wonder what you think of it all. Are you totally stoked by all of this madness? You must be so awed that you are actually an author now. You’re a pretty big deal kiddo.

I am listening to hear where you are.

Word. I’m listening to your old playlist. I do feel you and hear you. I know you aren’t gone. In the sunshine and the blue sky. In the wind at the beach. In the joy I find in the little things. The comfort of spending time with the people I care about. In dancing. I so wish we could dance together. I look forward to that. To dance, and sing loud, and jump around just me and you. Vang and I went and it was so much fun. I’ve been dancing lots, it feels so free and natural. I always feel you around me in the music. In the uncontained movements, in the smiles and talents of the musicians. In the freedom. I had so much fun in Oregon, and you were totally there. Enjoying each fiddle-filled note and each spin of the hula hoop. I miss hearing you jam on the piano; I’ll have to start again.

Then there’s the thought of us growing old as sisters. All having families and crazy insane lives. The thought of keeping it real as the Three Earl Girls. I’m sad we can’t make any more memories like that. You and Inka are so special to me, though, and I do have some pretty awesome ones. You brought us together, you know. You allowed us to be more real with each other and I am grateful for that. You are holding the family together. Just like you always did being the middle kid. Thank you for loving us each so separately but so entirely.

Will you hold my hand when I go?

I totally did that night, love. I don’t know if you remember very well, but we were all with you. Keri too (your other “sister”). Abe was asleep in the window seat. We painted your nails—really awesomely with stripes and dots. It was so late, and I was so tired, and I so didn’t want it to be over, but at the same time, was so ready for it to be over; for you to be comfortable again. So ready to be done with the disease. You were peaceful. You were quiet.

Love is watching someone die.

I don’t remember your last words, but I remember the feeling. The feeling of watching you sleeping, and that all I could do was sit there and hold your hand and think of how much I love you. And then the feeling of it not being you anymore on that hospital bed. You weren’t waiting around, you were off on your next great adventure. We were all there in that room, but you were long gone. Your body didn’t look like you anymore. Your soul, or spirit, or whatever we truly are was flying around or actually probably running around taking huge breaths, and laughing loud with joy. Off to bigger and better things. This is what you want for us too. You want us to get up and live, not stay lying on the bed holding your hand. It was raining hard on the way home and we listened to Dave Matthews. We’re coming up on the three-year anniversary of that day, not one of my favorite memories, except for the fact that I know you were liberated from disease that night. That you got to start fresh.

I miss you, dude. Like so very much. With each little part of me. I’ve been avoiding your absence. Not thinking about it. Not remembering fully like everyone else, not talking about you so much. Just trying not to remember that you’re over. But I’ve finally actually realized that you are so not over. You are so alive and present.

Just be happy, and if you can’t be happy, do things that make you happy. Or do nothing with the people that make you happy.

You are so wise. We’re all following you out one day, so my hope is that we can be more honest with one another. That we can love more simply and enjoy every little ordinary stupid hilarious thing more fully. That we find joy in silly online videos and nerdy songs and stupid jokes. I want us to take advantage of the awesome things that we have at our fingertips on this crazy beautiful planet. To send out more positive energy and to live in your example of love. That’s what I want for me, and our wonderful family, and for everyone.

I guess I should go, this is getting pretty long and you probably have more important things to do, like upload videos for your Astral-Tube channel or some alien rock show to party at. I didn’t tell you enough, thank you for being an awesome little sister for all those years, it was tons of fun. I’m so lucky to have had you around. Thank you for all that you’ve done for me, I happen to love you more than I can say. And like you said to me once, “Without you, oh geez, I would be in a family of psychos. Not that it’s not anyway, baha!” Thanks for keeping us sane and being a spark of joy in our lives.

Love you always, little sis,
Abby
AUGUST, 2013

My Poem for Esther

1. Star, when I first saw you I knew you were the right sister for me.

2. Your heart reminds me of you because you are so sweet and thoughtful to me. You were always there for me when I needed you the most and you never gave up on me.

3. Dear, if you are dead or alive, I will still love you no matter what.

Graham Kenneth Earl

SEPTEMBER, 2013

Esther’s Legacy

Her legacy is amazing, but her promise was even greater. Her heart was for love, and this world, and others. She would be answering an advice column, and creating life-changing blogs (alternately with super crazy, silly ones!), and volunteering with kids, and doing so much. Maybe putting on photography shows in a gallery, or writing children’s stories, or interning with John Green. Instead, she is gone. And we are left aching for the empty spaces, and undrawn pictures, and the unloved stray kitties that will never know her quiet hand.

Still. We have so much—and especially so much more than so many with our loss. And that is a gift. She was a gift. Somehow that has to be enough. That, and loving others for her.

Lori Earl

JANUARY, 2013

In the spring of 2009, Esther mentioned that she had written a letter to her “future self.” As she explained the concept, I listened, thinking nothing more than that it was a genius moneymaker idea for someone else. I think I responded with something like, “That’s nice, dear,” and then promptly forgot all about it. At the time, I simply had no idea how serious and mature my fourteen-year-old daughter’s thoughts really were. Two and a half years later—on December 1, 2011—I opened a new e-mail and read these words, “this is a letter for the future Esther, that I will get when I’m . . . seventeen.” She went on to explain that she’d sent it to our account “just in case” she wasn’t around to receive it herself. At that moment, I remembered the brief conversation we had had. And then the sobbing began. Her every word was soaked with meaning, every phrase making it harder to catch my breath. I felt suffocated and ran outside to phone Lori, who was meeting with someone at a local café. I wanted to be sure she didn’t open this final message from Esther in public.

—ESTHER’S DAD

futureme.org

this is a letter for the future esther, that I will get when I’m . . . 17. so you know that I’m really bad with words. I have emotions but I’m pretty bad at getting them out on paper. but this email is for you, and you’ll understand most of what I’m saying (I hope).

yeah. I’m 14 now. I’ll be 15 in 4 months. future me, I hope you’re doing better than present me. I hope that if you still have your cancer, at least it will be gone enough for you to be off oxygen. and if it’s not, just remember to use that Ocean Spray to keep your nostrils moist :] and I hope you’ve tried to talk to more people that also have cancer. in the world, there’s not ONLY boring people with cancer. there are people that are awesome, but maybe you just haven’t met them yet. you never will if you don’t try. do you still even have cancer? do you still feel sick? are you back in school after missing so many years of it?

in the present, I’m a lazy person. I mean, with the health issues there’s the fact that I can’t do much, but come on man, I hope you’ve gotten off your butt! you’ve finally started doing physical therapy in the present, but you keep trying to get out of it. I hope in the future you are more strong willed and go through with things. remember how you always wanted to do something for the world? remember that? if you haven’t done something amazing, don’t forget to try. the worst that can happen is you fail, and then you can just try again until you succeed. those words don’t work on me now, but just try to remember them.

graham is doing good, he’s 13 in present, a teenager. and when you get this he’ll be . . . 15. wow, that’s older than I am at present. his speech problems have gotten better, and present me is a lot nicer to him now than past me. I’m glad of that. how is he in the future? is he doing good? give him a hug. play some games with him. he loves you and I hope you pay more attention to him. and abraham? he’s what. 8 now? man, that’s old. is he a sports maniac? does he play basketball, baseball, soccer, swimming—all the things he wants to do now? and is he a brainiac? he’s so smart right now. he says the pledge of allegiance perfectly and can draw and say every letter of the alphabet. and he’s learning to read.

oh, and evangeline/angie? are you friends with her again? when you were 12 and she was 15, you guys were best friends. we told each other everything. but ever since I got sick we haven’t talked as much. I think maybe that might be because . . . I don’t know . . . her problems seem unimportant compared to my health? maybe. I don’t know. I wish that we could be best friends again. it’s kind of awkward to hang out with her now, though. is that gone? please make an effort to become, or stay, friends with her. you need each other. is she 20 now? holy cow. seriously? that is soo old.

abby is 19 now, oh no, she turned 20 yesterday. wow. twenty years old. I forgot to tell her happy birthday yesterday . . . I never expected the day to come when my sister has a two at the beginning of her age. it’s weird. future me has a sister named abby who is 22, eh? she’s of legal drinking age now, haha. she’s at gordon now, and she wants to be a PA. she came with me when I got my g-tube switched, and held my hand as they freaking pulled the life out of me (I could be exaggerating a little). she got kind of woozy and fell off her chair, but I think that’s because it was me, someone she knows, in pain. I think she’ll be an amazing doctor if she goes through with it. cheer her on, with whatever she’s doing.

and then there’s mom and dad. oh, mom, how is she? is she teaching again? is she happy? she works so hard now, everyday she’s so exhausted. she does too much. I love her, and remember to tell her that everyday. are her and dad still bickering? all they talk about now is money, since let’s face it, we have literally none. the world is in recession, and our family has ALWAYS been on the poor end, but now we’re living off of 300 dollars a month, really. dad just got a job as a mall security guard, it’s only temporary, but he seems better now that he’s not sitting at home job searching all day. I’m glad that he’s doing something. does he still have problems with depression? don’t get angry at him too much, he tries really hard and he loves you. if YOU had 5 kids and couldn’t get a job, I’m sure you’d be a little depressed as well.

oh, are you still a nerdfighter? because right now that’s a big part of your life. really pretty much all your life . . . I’m going to LeakyCon on May 21, to May 24, and I think abby or angie are going with me. if you have forgotten, it’s a harry potter convention, and I’m going to get to see all the bands I love, and hopefully meet some cool people. the only problem is I feel really guilty for doing this, because it’s so expensive. 250 dollars a person. but mom and dad know how much it means to me. it’s just crazy how bad I feel for wanting to spend so much money. yikes.

still a fan of harry potter? the movies are over by now, aren’t they? or is the last one coming out november 2011? I don’t remember. but remember that harry potter is how you made friends with a lot of people, and don’t shove him off once you don’t need him anymore. and what about doctor who? I’m just getting into that now. I feel like it’ll be a big part of my life, even though it’s just a tv show.

how are your cats? pancake and blueberry? are they doing well? did you get anymore cats? or pets? blueberry and pancake are laying with me in bed now, and they’re so warm. everytime one of them brushes against me, or lays next to me, they’re warmth and contentment make me smile. if anything has happened to them, since I know blueberry’s not the healthiest, don’t worry about being sad, or crying. and remember all the awesome times you have with them. and how’s Nibbs? do you still have him, or did you give him away? remember to show him some love, if you still have him. he’s a puppy and he doesn’t need the annoyance that’s directed towards him. you know that. are you volunteering at animal shelters, if you can? if you’re healthy enough, you should consider it.

what about, oh those silly things, boys? have you been kissed yet? amidst allllll the health problems and psychological problems, I still want to find a guy I like, who likes me back. I can’t help it, it’s just one of those stupid things I want. have you at least had a like who liked you back? geez . . .

are you still friends with alexa? and melissa? they’re the only people you’re still in contact with that have known you since you’ve been sick. they’re good friends. and even though you probably wouldn’t still be “friends” if you were healthy, they’re awesome, and you need to remember to talk to them more. if you haven’t talked to them in ages, why not do it now? and don’t be afraid to be yourself. you need friends, and there are other people who need friends. the way to get friends is to reach out.

how is your mental state? are you still as confused as ever? are you talking to god again? esther, god has been with you through everything you’ve gone through, he really loves you, and you need him. in the present you’re ignoring him, and I hate that. how do you think you made it through that radiation, when everyone thought you were going to die during the night? do you even remember this stuff?

on thursday I’m going to get another CT scan, and PET scan, and it will show how I’m reacting to the chemo. I really hope that my lungs are improving . . . I’m nervous, I’ve been feeling a little worse with my breathing lately, and I just hope and pray that it’ll be alright. hey, remember to thank your doctors. dr. smith and annette, they’re fantastic people. and they’re your doctors, don’t be afraid to tell them your worries.

to be honest, I’m not even sure if future me will even be alive. and for that reason I’m sending this email to mom and dad, since if I’m NOT alive, at least I know this email will be checked. man, what a way to end this letter . . . okay, future me, just try to be happy. try to do things. don’t forget that many times you thought you’d never make it through the night. remember all the people that have helped you in the past. tell your family how much you love them. go to school—it may seem stupid, but doing homework and research can get your mind off the little, bothersome things. read. you’re forgetting to read as much, and reading is a lovely thing. try to solve a rubiks cube again, you solved your first one yesterday :)

just . . . just be happy. and if you can’t be happy, do things that make you happy. or do nothing with people that make you happy.

there was so much more I wanted to say, and maybe I’ll send another one of these if anything happens. I love you, and I hope you turn out good.