INTRODUCTION

THERE ARE SOME things you learn in medical school that you spend the rest of your life unlearning. My adventure in this eye-opening process of discovery began in 1981, when I was a first-year intern in psychiatry at Jacobi Hospital, an affiliate of the Albert Einstein School of Medicine in New York City. At that time dissociation—by which I mean a state of fragmented consciousness involving amnesia, a sense of unreality, and feelings of being disconnected from oneself or one’s environment—was a relatively new concept. As an emerging field, it was largely an unmapped territory, remote, fascinating, exotic, and considered to be off limits for all but the most intrepid explorers. We had yet to establish that dissociation, as part of our standard response to trauma, is a near-universal reaction to a life-threatening event and that mild or moderate experiences of dissociation are as common in otherwise normal people as anxiety and depression.

Furthermore, we thought that dissociative disorders were exceedingly rare, as many still mistakenly do today. The only cases that caught anyone’s eye were the most extreme forms of the severest dissociative disorder, then called multiple personality disorder, now known as dissociative identity disorder, or DID. It was assumed that every multiple behaved like the sensationalized heroines of Sybil or The Three Faces of Eve, floridly switching among dozens of separate personalities inside them. We had no idea that this dramatic switching is atypical and that multiples typically behave with far more subtlety and control, using compensatory techniques that make them indistinguishable in public from the figurative neighbor next door.

Unfortunately, this myth of the multiple as a freak of nature persists even today. It certainly prevailed in the early eighties, when I was an intern at Jacobi Hospital, and our introduction to a DID case had all the high drama and voyeuristic thrill of a theatrical event. Jacobi was an urban referral center for a very large mental health catchment area in the Bronx, serving an inner-city population of working-class people who were too poor to afford insurance. The psychiatric ER was a drab warren of interview cubicles and a crowded, noisy waiting room. Police officers were constantly bringing in belligerent, disoriented, or intoxicated drug users or alcoholics who needed to be restrained and were often handcuffed to chairs.

As part of our training, my fellow interns and I made rounds with a psychologist who was a senior member of the faculty at Einstein and wanted us to observe an inpatient he suspected had multiple personality disorder. The first day we were simply to meet Gloria, and the next day we were to watch if alternate personalities emerged. We were told that this would be a unique experience since Gloria’s condition was so rare that we would probably never encounter more than one or two such cases in a lifetime of practice.

When we first saw Gloria, a Hispanic woman in her early thirties with caffe latte—colored skin and a mass of curly dark hair framing her thin face, she seemed depressed and anxious but not remarkable in any discernible way. She conversed intelligently as a mature woman, revealing that she was a single mother supporting three children with part-time work as an office clerk. Her erratic behavior involving speaking like a child and slashing her wrists after a fight with her boyfriend caused her to be hospitalized.

The following day, when we went back to see Gloria, she was hooked up to an IV through which sodium amobarbital (Amytal) was being infused. Amytal is a barbiturate that has a sedating effect and lowers inhibitions. The idea was to relax Gloria sufficiently so that her guard would lower and her alternate personalities—if they existed—would emerge, thereby confirming the suspected diagnosis.

We watched, wide-eyed, as the Amytal worked with startling efficiency. In a matter of minutes Gloria switched to a tearful adolescent alter she called Carmelita, sadly complaining in a high, girlish voice about the hopelessness and oppressiveness of her life. This weeping teenager, tossing her hair back from her face and wringing her hands, was a completely different person from the woman we had met the day before. Suddenly Gloria switched again. This time she regressed into a more childlike state, CeeCee, and began babbling in baby talk about “bad booboos that Mommy and Daddy did,” and about her mother’s yanking her ponytail and part of her ear out of her head and making her jump from one rooftop of a building to another to escape her drunken father, who was chasing them with a drawn fishing knife. All the while she was wailing and pounding her fists on the bed in fear and rage. Then, in the blink of an eye, we heard, “Can I talk to you? It’s me, Laura,” as another alter spoke up in a polite, reasonable tone. “I think it was unfortunate that we needed CeeCee to bear the brunt of all of that crazy stuff that everybody said was a lie, but somebody has to carry all of it inside; otherwise we’re going to go crazy.”

When we left Gloria’s room, I came away shaken by what I had seen. I wanted to learn what the course of treatment for her would be. When I inquired about her later, I was told that she fled the hospital the next day after the Amytal had induced her alters to surface before a group of gawking residents. I could understand why. How frightened, embarrassed, and humiliated she must have been. Regret for the insensitivity she’d suffered under the rubric of “training” turned this unfortunate event into a defining moment for me.

It was obvious that presenting Gloria to us like a dancing bear who could produce alters on demand was of no therapeutic value to the patient. Surely she would have preferred being in control of her personality states herself. What need was there to induce them by using drugs without treating these personalities once they were out? I vowed that this would not be the diagnostic method of choice for me if I ever came across a multiple again. Given the opportunity, I would work with such a person gently, helping her to learn about the different parts of herself and to feel comfortable with them so that she could talk about them openly and eventually accept and unify them. That opportunity seemed only a remote possibility.

I left Jacobi at the end of my internship and went to Yale in 1982 to finish my residency. During my first year at Yale my clinical supervisor, Francine Howland, M.D., introduced me to the treatment of dissociative symptoms and disorders. She was one of a tiny minority of professionals who gave such work any credence. Having been previously told how rare multiples were, I was astonished to identify three people that year who exhibited all of the symptoms of multiple personality disorder, now called dissociative identity disorder or DID. I wondered why I, a junior resident, was encountering so many of these cases whereas more experienced clinicians rarely did. Others questioned my diagnoses, provoking electrifying controversy about them, but the symptoms were irrefutably present.

I uncovered another, even bigger surprise. The symptoms were present not only in the most extreme cases like Gloria’s, but in many much more subtle but nonetheless significant dissociative experiences. Over and over again I heard about these symptoms from people in all walks of life—professionals, business people, college students, laborers, homemakers, artists and writers. They spoke of episodes of “zoning out” or having “blank spells”; of “acting like some other person”; of “feeling apart from myself and watching myself from afar”; of “not allowing myself to feel anything”; of “just going through the motions”; of feeling “foggy” or “not feeling like a real person”; of “hearing myself talking as if someone else is speaking”; of thinking “nothing around me looked real”; of feeling “confused about who I am.” The prevalence of these experiences was stunning. Was it possible that dissociation was far more common than psychiatrists thought? If so, what was I doing to identify it that others were not?

When I heard that an organization called the International Society for the Study of Dissociative States/Multiple Personalities (now called the International Society for the Study of Dissociation) was holding its first conference in Chicago, I was very excited. I assumed I would be in a supportive environment though not many people would be attending. Curiously clinicians who had never seen cases of dissociative disorders thought that the descriptions were too bizarre to be believed. This defied logic: people usually form opinions about what they know; they do not develop strong beliefs about a subject before they have any knowledge of it.

I arrived in Chicago late at night on the eve of the conference and checked into the downtown hotel where the conference was being held. The lobby was empty, and so was the elevator that took me to my floor. It was late, but there seemed to be so few signs of life that I wondered whether the conference had been called off for lack of attendance.

In the morning I walked into the conference room with my Styrofoam cup of coffee in hand and was amazed to see at least four hundred people there, milling about excitedly or already seated, waiting expectantly for the conference to begin. These attendees from throughout the United States were all practicing mental health professionals—psychiatrists, psychologists, social workers—who had been working with patients who had dissociative disorders. This was the validation I needed. The presence of so many clinicians who had actual experience with this condition helped confirm my belief that dissociative disorders were not so rare after all.

Such pioneers in the field as Richard P. Kluft, M.D., Helen Watkins, M.A., John Watkins, Ph.D., and Cornelia Wilbur, M.D., presented findings based on years of clinical experience that gave me valuable insights. They documented the close association between dissociative disorders and childhood abuse—emotional, physical, and/or sexual—as Glorias case had suggested, and offered important guidelines for treatment. After three days of listening to presentations, attending workshops, and networking with the other professionals there, I still felt that something was missing in the way of a scientific instrument for diagnosis.

It seemed to me that the reason I’d already seen a few multiples as a novice, although experienced people hadn’t come across them, was related to the group of questions I was asking every patient I saw. The questions were specifically planned to detect this disorder. Therapists generally were not asking their patients about dissociative symptoms at all. They were asking about the symptoms of depression, panic disorder, manic-depressive illness, attention deficit hyperactivity disorder, obsessive-compulsive disorder, and every other disorder except dissociative disorders. No wonder these disorders were thought to be so rare: hardly anyone was screening for them.

Back at Yale I continued asking patients my questions about dissociative symptoms and discovered that they not only were widespread, but fell along a continuum from mild (normal) to moderate to severe. Many people experienced them fleetingly from time to time with no sign of any psychiatric problem; other normal people experienced them as a transient response to a life-threatening accident or a near-death event; still others had dissociative episodes that occurred in times of stress or temporary crises; and there were those whose episodes were of such frequency and severity that they clearly indicated a dissociative disorder.

The most common experiences included not recognizing oneself in the mirror (hence the title of this book); staring into space and losing track of time; being uncertain whether a memory was from a dream or reality; feeling outside oneself as both an observer and a participant; feeling that one was watching a movie of one’s progression through life; experiencing a numbing of emotions; missing parts of conversations; and being unable to remember something one had just done. After hearing about these symptoms repeatedly, I realized that even when they weren’t alarming, they were still important occurrences people needed to talk about to a therapist as part of a comprehensive assessment. Very often these symptoms signified deeper issues that were not being treated appropriately, because neither the patient nor the therapist had recognized their importance. This was especially true if the symptoms recurred from time to time or happened frequently, caused distress, or became disruptive to a person’s life.

There were other, somewhat less common symptoms that were more likely to be associated with a dissociative disorder, depending upon how persistent and troubling they were. These included the feeling that other people and the world around a person were not real; finding oneself in a place with no idea of how one got there; and feeling as if one were looking at the world through a fog.

And then there were the more bizarre phenomena around which a whole mythology had arisen. Besides the assumption of different personalities, there were past lives and alien abduction experiences. Though these dramatic episodes seized upon the public’s imagination, from an analytical standpoint, they were all episodes of dissociation.

As I kept hearing about these symptoms from patients, I realized what a hidden epidemic dissociation is. I saw that the psychiatric community and the public were laboring under the misperception that dissociation was an all-or-nothing matter—either you were a “Sybil” or you were free and clear. What was missing from the equation was the continuum of dissociation, the same mild to moderate to severe range that occurs in depression or anxiety.

A person who is mildly depressed, for example, might go through a day or two of having “the blues” and snap out of it naturally without needing professional help. Further along the continuum, a moderately depressed person in a deeper or longer funk might need therapy and/or medication to lift the mood, and someone who is severely depressed might need to be hospitalized. Similarly, a person who has a slight case of nerves before an anxiety-provoking event may not need psychotherapy, whereas someone with a moderate or severe level of anxiety might find it hard to function without treatment. The same continuum holds true for dissociation. Everyone dissociates at times, just as everyone feels depressed or anxious on occasion. There are some everyday normal dissociative symptoms that are benign, but there is a whole range of other symptomatic experiences that have to be looked at with a skilled eye. Even someone who is not severely dissociative may need help for these symptoms and greatly benefit from it.

Determining whether a person had a dissociative disorder or not, I found, was all a matter of asking questions about dissociative symptoms and evaluating the answers. How many of the symptoms did someone have? How often did they occur? Did they cause distress? Were they disruptive to the person’s life? The answers gave a snapshot of the inner workings of a person’s response to trauma or repeated abuse in much the same way that a chest X ray gave a picture of someone’s lungs. To put it another way, just as the X ray detected shattered bones, my interview detected symptoms of a fragmented sense of self. Clearly the questions that I was asking were yielding crucial information necessary for an accurate diagnosis—data that could turn what was then an uncertain art into a science.

One day on a train ride from New Haven to New York, I jotted down the interview questions from memory. When I returned to Yale, I began thinking about a research project to look at the questions and validate them in the form of a standardized psychiatric interview. I wanted to seek funding in order to turn my set of questions into a diagnostic instrument that any trained clinician could administer independently and find the same patterns I did—one pattern for those people who might dissociate on occasion but have no disorder and another for those who do have a dissociative disorder.

In my fourth year of residency I went to see a well-respected expert in administrative psychiatry and inquired about fellowship and research options to carry out my plan. He heard me out with an inscrutable expression on his face. When I was done talking, he cocked an eyebrow at me quizzically, paused for a long moment, and said in the most tactful, well-meaning way, “Marlene, I would advise you that if you are interested in a career in research, find another subject.”

His answer took me aback, but I knew he was only looking out for my interests. Given the skepticism in the air, I was facing an uphill battle. No one had ever been awarded a large grant to do research in dissociation, so the odds were not in my favor. Still, this was where I wanted to go. My colleague kindly referred me to the two people who could help me get there: Bruce Rounsaville, M.D., a renowned expert in substance abuse and diagnostic testing of substance abusers, and Domenic Cicchetti, Ph.D., a widely recognized expert in testing the reliability and validity of psychiatric diagnostic tools.

With the assistance of Bruce and Domenic I was able to conduct the field testing for a diagnostic tool that could be replicated throughout the world. The test became known as the SCID-D (Steinberg Clinical Interview for DSM-IV Dissociative Disorders). In 1989 I was immensely pleased to be awarded the first of two very substantial grants from the National Institute of Mental Health. These grants were the first ever given to a researcher in dissociation, and they allowed me to conduct field trials of the SCID-D during a period of seven years. Three hundred and fifty people were interviewed by five experienced clinicians, producing over one thousand hours of videotaped interviews. Again the symptoms covered a wide spectrum of experiences and behaviors, ranging from the benign to the more severe. In this book you’ll find gripping stories of three people at the upper end of the scale and discover the heroic inventiveness and creativity of the human mind fighting to survive inhuman cruelty and exploitation.

The questionnaires at the end of each chapter on each of the five core symptoms, adapted from the SCID-D, will enable you to tell where you or a loved one rank on the scale from normal experience to evidence of a deeper problem for which appropriate treatment is advisable. You may be surprised to find that experiences you’ve written off as inconsequential are actually dissociative symptoms. Though they may not be severe, they could still indicate the need for a full assessment by a professional and a new kind of therapy described in this book. This therapy will help you get to the bottom of hidden parts of yourself that you may not have fully understood or been able to control up until now. With the proper treatment even DID, the most severe form of the dissociative disorders, has a good prognosis for recovery.

If you are concerned about your own psychological health or that of a loved one, you should not be without the information in this book. You need to know that just as we developed earlier instruments for screening conditions like depression, attention deficit hyperactivity disorder (ADHD) and obsessive-compulsive disorder (OCD), we now have a breakthrough diagnostic tool for dissociation that has been rigorously tested scientifically—the SCID-D. The mental health community has embraced it as the most comprehensive and widely used “gold standard” with which all other tests of this type must be compared, but our emergence from the Dark Ages of dissociation has only recently begun.

This book will give you a context for recognizing symptoms of a condition that, through a conspiracy of silence, misunderstanding, and ignorance, has become the secret epidemic of our time. The material in its pages will finally shine a light on what could very well be the underlying cause of the anxiety, depression, manic-depression, panic attacks, ADHD, OCD, or even schizophrenia that you or a loved one may have been diagnosed with mistakenly. Based on a recent study over 30 million people, or 14 percent of the general public, experience “substantial” dissociative symptoms. You may be one of the millions whose symptoms have been undetected and untreated, because you couldn’t identify them to report them to a therapist or were not asked about them. This may be the reason why you feel stuck in life or are wandering lost in therapeutic circles, not making any significant headway or achieving long-lasting improvement.

One of the trickier aspects of dissociation is that the more chronic some symptoms are, the less stress they may cause because you’ve adapted to them and they’ve become as normal to you as breathing. The information and tests in this book adapted from the SCID-D will help you identify them. No matter where your symptoms fall on the continuum, you need to know why you dissociate and whether your experiences are a clue to a deeper problem.

Since dissociation touches the lives of all of us as a universal coping mechanism in response to high stress or trauma, as a society we cannot afford to keep it in the closet one more day, a dark secret cloaked in ignorance, bias, and myth. This book will dispel popular misconceptions about dissociation and tell you the truth about it—a truth more creative and deeply human than stereotypes would have you believe. It will give you a working knowledge of this fascinating defense: why we have it; what causes it to go out of control; how to distinguish normal experiences of dissociation from problematic ones. And it will inform you of the latest advances in diagnosis and treatment.

It is no exaggeration to say that just as hysteria was the dominant psychiatric illness in Freud’s time, and depression reigned in the late twentieth century, dissociation is the illness of today. Indeed, most people who have a dissociative disorder enter into therapy complaining of depression. As many as one in three women and one in five men in the United States who were sexually abused or exploited as children-more than 70 million people—are highly vulnerable to some dissociative symptoms or disorder. More cases of DID, the most severe of the disorders, have been reported within the last ten years than in the preceding two centuries, and it is estimated that 1 percent of the general population or 2.5 million people are suffering from it. Were it not for the fact that so many people who actually have a dissociative disorder are misdiagnosed and mistreated for something else, the reported numbers would skyrocket to reflect their true epidemic proportions.

Wherever your symptoms rate on the continuum of dissociation, you can be helped to a better understanding of yourself, and a richer life, through this book. Dissociation is a universal language of buried feelings and memories. Only by getting in touch with the hidden parts of yourself that may be thwarting the full realization of your talents or fulfillment in your personal relationships can you prevent or end unnecessary pain. This book can open a portal—one closed for far too long—onto a transformative path toward enlightenment, healing, and joy.