appendix B

Additional Resources

The following is a partial list of some of the available autism spectrum Internet websites and online communities, including some by and for autism self-advocates.

Advisory Board on Autism & Related Disorders (ABOARD). www.aboard.org

ASCEND Group. An Asperger’s Syndrome alliance for the Greater Philadelphia region. www.ascendgroup.org

Asperger’s Association of New England. Fosters awareness, respect, acceptance, and support for people with Asperger’s and their families. www.aane.org

Asperger Syndrome Education Network, Inc. Headquartered in New Jersey. www.aspennj.org

Aspies for Freedom. A safe and comfortable forum for Aspies and those with autism. www.aspiesforfreedom.com

Autism/Asperger’s Digest Magazine. www.autismdigest.com

Autism Living and Working. Pennsylvania-based group of parents and others who support community living and housing for folks with autism. www.autismlivingworking.org

Autism National Committee. www.autcom.org

Autism Network International. An autistic-run self-help and advocacy organization for people on the autism spectrum. www.ani.ac

Autism One Radio. Online radio programming established by parents. www.autismone.org/radio

The Autism Perspective (TAP). Website for the magazine The Autism Perspective. www.theautismperspective.org

The Autism Service Center. A national autism hotline and website. www.autismservicescenter.org

Autism Society of America. www.autism-society.org

Autism Spectrum Quarterly. Autism “magajournal” with articles by, for, and about individuals with autism. www.ASQuarterly.com

Autism Talk. An online community with a variety of discussion categories on all aspects of autism. www.autismtalk.net

Autism Today. Latest news and resources for autism and autism-related issues. www.autismtoday.com

Autistics.Org. Resources by and for persons on the autism spectrum, including many links to other self-advocates’ websites. www.autistics.org

The Bubel/Aiken Foundation. www.thebubelaikenfoundation.org

Chat Autism. A chat and community forum for those with autism and their families. www.chatautism.com

Cure Autism Now. www.cureautismnow.org

The Dan Marino Foundation. www.danmarinofoundation.org

Donna Williams, prominent autism self-advocate and author. www.donnawilliams.net

The Doug Flutie Jr. Foundation for Autism, Inc. www.dougflutiejrfoundation.org

Families for Early Autism Treatment. www.feat.org

The Global and Regional Asperger Syndrome Partnership (GRASP). An informational, educational, and advocacy organization operated by persons on the autism spectrum. www.grasp.org

The Gray Center, website of educator and social stories founder, Carol Gray. www.thegraycenter.org

Lianne Holliday Willey, Asperger’s Syndrome self-advocate and author. www.aspie.com

Looking Up, the monthly international autism newsletter. www.lookingupautism.org

MAAP Services. Covers autism, Asperger’s syndrome, and Pervasive Developmental Disorder. www.maapservices.org

National Alliance for Autism Research. www.naar.org

National Association of Councils on Developmental Disabilities. www.nacdd.org

National Parent to Parent Network website. www.P2PUSA.org

Networks for Training and Development. Pennsylvania-based training and resource organization for caregivers of people with differences, including autism, that supports the use of Augmentative and Alternative Communication methods. www.networksfortraining.org

Neurodiversity.com. A demagogic collection of information “honoring the variety of human wiring” that also includes national news reports on the abuses committed against persons with autism. www.neurodiversity.com

Online Asperger’s Syndrome Information and Support (OASIS). Website created by parents. www.aspergersyndrome.org

Ontario Adult Autism Research and Support Network (OAARSN). www.ont-autism.uoguelph.ca

Stephen Shore, Asperger’s Syndrome self-advocate, consultant, and author. www.autismasperger.net

Spectrum Publications. Home of Spectrum magazine. www.spectrumpublications.com

Temple Grandin, perhaps the best known autism self-advocate and bestselling author. www.templegrandin.com

Tony Attwood, acknowledged Asperger’s Syndrome authority. www.tonyattwood.com

Unlocking Autism. Website with a listserv to connect parents, teens, and adults with autism and Asperger’s. www.unlockingautism.org

Augmentative and Alternative Communication

The following Internet websites and online communities support the use of Augmentative and Alternative Communication, including Facilitated Communication, as a viable and valid alternative to speech for individuals unable to talk or those who cannot speak clearly.

Autism National Committee Position on Facilitated Communication. www.autcom.org/facilitated.html

Autism Society of Wisconsin Resolution on Facilitated Communication. www.geocities.com/athens/forum/8925/resolut1.htm

Breaking the Barriers. A website supported by TASH (an international organization for persons with disabilities and their supporters) that includes vision statements, a call to action, and personal stories. www.breaking-the-barriers.org

Communication and Learning Enterprises (CandLE). An organization devoted to developing the use of Facilitated Communication Training in the United Kingdom for children and adults with speech and motor impairment. www.contactcandle.co.uk

DEAL (Dignity, Education, and Language) Communication Centre, Australia, Rosemary Crossley, PhD, Director. http://home.vicnet.net.au/~dealcc/

FC Net. Ashland University, Ohio-based website serving a global, open distribution list of persons interested in all aspects of Facilitated Communication. www.geocities.com/athens/forum/8925/fc_net.htm

FC World. An international Internet group of Facilitated Communication users, their educators, and caregivers. http://groups.yahoo.com/group/FCworld/

Facilitated Communication Coalition of Indiana. www.bloomington.in.us/~fcindy//

Facilitated Communication Institute, Syracuse University, New York, Dr. Douglas Biklen, Director. http://soeweb.syr.edu/thefci

Facilitated Communication Resource Directory. A national and international resource list of individuals who have been designated as FC points of contact in their countries or states. http://soeweb.syr.edu/thefci/7-4ric.htm

Facilitated Communication in Washington. Washington state’s Facilitated Communication website. www.geocities.com/athens/forum/8925/home.html

Michigan Protection and Advocacy Service Model Policy on Facilitated Communication. http://soeweb.syr.edu/thefci/guide-mi.htm

The Pennsylvania Perspective: Implementation of Best Practice in Facilitated Communication Training. http://soeweb.syr.edu/thefci/guide-pa.htm

State of New Hampshire Department of Health and Human Services Division of Developmental Services Guidelines for the Use of Facilitated Communication. http://soeweb.syr.edu/thefci/8-3new.htm

TASH Resolution on Facilitated Communication. www.tash.org/resolutions/res02faccom.htm

The University of Maine Center for Community Inclusion and Disability Studies. www.umaine.edu/cci/

Vermont Facilitated Communication Network. www.uvm.edu/~uapvt/faccom.html

Watch Our Words. An organization for users of Facilitated Communication and their friends in Colorado. http://donna.jdowning.com/index.htm