Polycystic Ovarian Syndrome Association (PCOSA)
P.O. Box 3403
Englewood, CO 80111
http://www.pcosupport.org
This is the first public awareness group that promoted information and support for women with PCOS. It has much information on various aspects of the syndrome, and recent highlights of advances in diagnosis and treatment.
Endocrine Society
8401 Connecticut Avenue, Suite 900
Chevy Chase, MD 20815
301-941-0200
1-888-363-6274
http://www.endo-society.org
This is the site of over 11,000 clinical experts in endocrinology as well as endocrine researchers, many of whom are involved in PCOS and reproduction. Although the Web site has many endocrine subjects, a careful search of it will yield information on PCOS. A link to The Hormone Foundation, which has a major interest and involved experts in the care of women with PCOS, is provided.
The Hormone Foundation
http://www.hormone.org
For a list by state of endocrinologists expert in PCOS:
http://www.hormone.org/resources/specialist.php3
This public education affiliate of the Endocrine Society promotes prevention, treatment, and cure of hormone-related conditions. Important handouts and fact sheets for PCOS and related hormonal conditions (e.g., obesity) can be downloaded from this site.
American Association of Clinical Endocrinologists (AACE)
1000 Riverside Avenue, Suite 205
Jacksonville, FL 32204
904-353-7878
Fax: 904-353-8185
http://www.aace.com
The AACE is an organization of over 5,000 clinical endocrinologists globally. These medical endocrinologists are board certified in endocrinology and metabolic diseases, and can be located in the medical directory. Most are qualified to treat most endocrine disorders, including PCOS. A search locates PCOS-experienced endocrinologists near your location. A search locates endocrinologists near your location. A search can also be performed for specific complaints, including PCOS, adrenal disorders, diabetes, and hirsutism, with names of specialists in these areas. Weekly news articles and guidelines for specific conditions are available, as well as articles of importance relating to PCOS.
Androgen Excess Society (AES)
http://www.androgenexcessociety.net
Contact:
Ms. Lois Dollar
Secretary to the Executive Director, Dr. Ricardo Azziz
Department of Ob-Gyn
Cedars-Sinai Medical Center
8635 West Third Street, Suite 160W
Los Angeles, CA 90048
310-423-7433
dollarl@cshs.org
FAQ with links and detailed information on PCOS:
http://www.androgenexcessociety.org/faq.html
This group of clinicians and scientists promote knowledge of conditions such as PCOS, adrenal hyperplasia, early onset of adrenal hormone excess, and hirsutism of an undefined nature.
CARES Foundation, Inc.
866-CARES37 (866-227-3737)
http://www.caresfoundation.org
For those interested in male hormone excess in adrenal gland and associated disorders, which may mimic PCOS. Also has excellent links to many disorders.
PCOS Pavilion of ObGyn.net
http://www.obgyn.net/pcos/pcos.asp
Must-read for all.
ObGyn.net links
http://www.obgyn.net/medical.asp?page=/english/clinical
Exhaustive, with many topics of importance. Many articles feature recent data on PCOS and are written by experts.
PCOS SoulCysters
http://www.soulCysters.com
Many features and a database of articles.
PCO Teen
http://www.pcossupport.org/living/teen/about.php
A section of the PCOSA Web site, focusing on teens with PCOS.
PubMed
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
A search engine for abstracts on any topic in medicine. To look at a topic— for example, the effect of treatment of hirsutism in PCOS—enter Search as follows: PCOS and treatment and hirsutism. To learn of complications in pregnancy: PCOS pregnancy and complications. You can learn the use of PubMed via the Web sites Tutorial section. Related articles and links can be found with each citation. It is an invaluable, NIH-based source of information. Most authorities in medicine use it as a major search engine for research. Clicking on an article leads you to an abstract that may be of interest to you.
American Society for Reproductive Medicine (ASRM)
1209 Montgomery Highway
Birmingham, AL 35216-2809
205-978-5000
http://www.asrm.org
Many members, recognized leaders in this area, help answer questions relating to infertility, IVF, menopause, and other important aspects of reproductive care, diagnosis, and management. Patient fact sheets and information booklets are available, with much information on the latest in assisted reproductive technologies.
Resolve: The National Infertility Association
National Headquarters
7910 Woodmont Avenue, Suite 1350
Bethesda, MD 20814
301-652-8585
Chapter and Constituent Services
http://www.resolve.org
Provides access to all family-building options to women experiencing infertility or other reproductive disorders, along with support services, physician referrals, and education.
InterNational Council on Infertility Information Dissemination (INCIID)
703-379-9178
http://www.inciid.org
First Visit IVF
http://www.firstvisitivf.org
For those requiring information on in vitro fertilization (IVF).
The American College of Obstetricians and Gynecologists (ACOG) http://www.acog.org
Council for the Advancement of Diabetes Research and Education (CADRE)
1250 Broadway, 36th floor
New York, NY 10001
888-771-1297
http://www.cadre-diabetes.org
Audio lectures, with slides, are presented by experts.
American Diabetes Association
http://www.diabetes.org/home.jsp
National Diabetes Information Clearinghouse (NDIC)
http://diabetes.niddk.nih.gov/
National Diabetes Education Initiative
http://www.ndei.org
Diabetes Life.Com
http://www.diabetes.com/type_2_diabetes.html
A comprehensive guide to diabetes management and insulin resistance.
Obesity in America
http://www.obesityinamerica.org
Latest on obesity research and treatment. There are many additional links on obesity in the Resources section. A must-read for those with obesity, whether they have PCOS or not.
American Obesity Association
http://www.obesity.org
NAASO: The Obesity Organization
http://www.naaso.org
American Board of Physician Nutrition Specialists (ABPNS)
http://www.main.uab.edu/ipnec/show.asp?durki=37725
American Heart Association
http://www.deliciousdecisions.org
Dietary guidelines and heart-healthy recipes.
American Heart Association
http://www.justmove.org
Personalized fitness recommendations, online exercise diary, and more to help you lead a more active lifestyle.
National Institutes of Health (Obesity)
http://www.health.nih.gov/result.asp/476/29
Body mass index (BMI) calculation
http://www.cdc.gov/nccdphp/dnpa/bmi/calc-bmi.htm
http://www.asbs.org/html/bmi.html
Calculation of calories burned in various activities: http://www.caloriecontrol.org/exercalc.html
American Dietetic Association
http://www.eatright.org
Click on Food & Nutrition Information.
Center for Science in the Public Interest http://www.cspinet.org
Healthatoz.com
Click on Nutrition.
American Academy of Dermatology
http://www.aad.org
American Electrology Association
http://www.electrology.com
American Society for Dermatologic Surgery
www.asds-net.org/Patients/FactSheets/patients-Fact_Sheet.html
National Alliance for the Mentally III
24 hour/7 day NAMI Helpline: 800-950-6264
http://www.nami.org
National Mental Health Association
800-969-6642
http://www.nmha.org
American Psychiatric Association
http://www.psych.org
American Psychological Association
http://www.apa.org
National Depressive and Manic Depressive
Association (support groups in your area)
http://www.ndmda.org
National Foundation for Depressive Illness
http://www.depression.org
Anxiety Disorders Association for America
http://www.adaa.org
The Anxiety Network International
http://www.anxietynetwork.co
American Medical Women’s Association
http://www.amwa-doc.org
American Heart Association
http://www.women.americanheart.org
Web site on women’s issues
http://www.ivillage.com
Microsoft Network
http://www.msn.lifestyle.com