Foreword

If you’re thinking about having DBS for a neurological problem, read this book. It explains exactly how the process of selecting patients is made, what steps are necessary before surgery, what happens during surgery, and what happens after surgery. Each step of the lengthy process is discussed in detail. Pictures and photos illustrate much of the process. Time estimates are even provided so you will understand why the surgery takes so long; what placement of “the frame” means; and what to expect on completing the surgery. These authors discuss financial aspects of the surgery and how the results of surgery may affect the family and social support system. It is an all-inclusive discussion that should help quell anxieties while you’re waiting or deciding. There is a glossary to help you understand any technical terms you are bound to come across on the internet or in any discussion.

DBS is, at least for most of us, still something of a “science fiction” type approach to treating an illness although it’s been an FDA approved treatment for many years, paid for by all medical insurers. These authors are, however, very much grounded in reality. They have lots of experience and have been through thick and thin with many, many patients (including my own), experiencing the wonderful joy of the great successes but they’ve also been there for the patients with the side effects or the disappointing responses. While there is little so rewarding for a health professional as when a patient describes the surgery as “my second birthday,” there is also little so disappointing as a treatment failure.

These authors present an accurate and balanced picture of DBS and make it clear that it always represents the choice made by weighing the risks and potential side effects. This is not curative surgery. It is one treatment approach, like a medication. Where the balance point is located for making the decision differs for each individual, as this book makes very clear.

A frequent radio advertisement for a clothing store notes that, “An educated consumer is our best customer.” That certainly applies to DBS surgery. Take the time to learn all you can. This book will help.

Joseph H. Friedman, MD

Director, Movement Disorders Program

Butler Hospital

Department of Neurology

Alpert Medical School of Brown University

Providence, Rhode Island