The 36-Hour Day by Mace, Nancy L. -- Read -- Imperial Library of Trantor

Index

Cover Page Title Page Copyright Page Dedication Contents Foreword Preface Acknowledgments 1 Dementia

What Is Dementia? The Person Who Has Dementia Where Do You Go from Here?

2 Getting Medical Help for the Person Who Has Dementia

The Evaluation of the Person with a Suspected Dementia Finding Someone to Do an Evaluation The Medical Treatment and Management of Dementia

The Physician The Nurse The Social Worker The Geriatric Care Manager The Pharmacist

3 Characteristic Behavioral Symptoms in People Who Have Dementia

The Brain, Behavior, and Personality: Why People Who Have Dementia Do the Things They Do Caregiving: Some General Suggestions Memory Problems Overreacting, or Catastrophic Reactions Combativeness Problems with Speech and Communication

Problems the Person with Dementia Has in Making Himself Understood Problems the Person with Dementia Has in Understanding Others

Loss of Coordination Loss of Sense of Time Symptoms That Are Better Sometimes and Worse at Other Times

4 Problems in Independent Living

Mild Cognitive Impairment

Managing the Early Stages of Dementia

When a Person Must Give Up a Job When a Person Can No Longer Manage Money When a Person Can No Longer Drive Safely When a Person Can No Longer Live Alone

When You Suspect That Someone Living Alone Is Developing Dementia What You Can Do Moving to a New Residence

5 Problems Arising in Daily Care

Hazards to Watch For

In the House Outdoors In the Car Highways and Parking Lots Smoking Hunting

Nutrition and Mealtimes

Meal Preparation Mealtimes Problem Eating Behaviors Malnutrition Weight Loss Choking When to Consider Tube Feeding

Exercise Recreation

Meaningful Activity

Personal Hygiene

Bathing Locating Care Supplies Dressing Grooming Oral Hygiene

Incontinence (Wetting or Soiling)

Urinary Incontinence Bowel Incontinence Cleaning Up

Problems with Walking and Balance; Falling

Becoming Chairbound or Bedfast Wheelchairs

Changes You Can Make at Home

Should Environments Be Cluttered or Bare?

6 Medical Problems

Pain Falls and Injuries Pressure Sores Dehydration Pneumonia Constipation Medications Dental Problems Vision Problems Hearing Problems Dizziness Visiting the Doctor If the Ill Person Must Enter the Hospital Seizures, Fits, or Convulsions Jerking Movements (Myoclonus) The Death of the Person with Dementia The Cause of Death Dying at Home Hospice Dying in the Hospital or Nursing Home When Should Treatment End? What Kind of Care Can Be Given at the End of Life?

7 Behavioral Symptoms of Dementia

The Six R’s of Behavior Management Concealing Memory Loss Wandering

Reasons That People Wander The Management of Wandering

Sleep Disturbances and Night Wandering Worsening in the Evening (“Sundowning”) Losing, Hoarding, or Hiding Things Rummaging in Drawers and Closets Inappropriate Sexual Behavior Repeating the Question Repetitious Actions Distractibility Clinging or Persistently Following You Around (“Shadowing”) Complaints and Insults Taking Things Forgetting Telephone Calls Demands Stubbornness and Uncooperativeness When the Person with Dementia Insults the Sitter Using Medication to Manage Behavior

8 Symptoms That Appear as Changes in Mood

Depression Complaints about Health Suicide Alcohol or Drug Abuse Apathy and Listlessness Remembering Feelings Anger and Irritability Anxiety, Nervousness, and Restlessness False Ideas, Suspiciousness, Paranoia, and Hallucinations

Misinterpretation Failure to Recognize People or Things (Agnosia) “You Are Not My Husband” “My Mother Is Coming for Me” Suspiciousness Hiding Things Delusions and Hallucinations

Having Nothing to Do

9 Special Arrangements If You Become Ill

In the Event of Your Death

10 Getting Outside Help

Help from Friends and Neighbors Finding Information and Services Kinds of Services

Having Someone Come into Your Home Adult Day Care Short-Stay Residential Care

Planning in Advance for Home Care or Day Care When the Person with Dementia Rejects the Care Your Own Feelings about Getting Respite for Yourself Locating Resources Paying for Care Should Respite Programs Mix People Who Have Different Problems? Determining the Quality of Services Research and Demonstration Programs

11 You and the Person Who Has Dementia as Parts of a Family

Changes in Roles Understanding Family Conflicts

Division of Responsibility

Your Marriage Coping with Role Changes and Family Conflict

A Family Conference

When You Live out of Town When You Are Not the Primary Caregiver, What Can You Do to Help? Caregiving and Your Job Your Children

Teenagers

12 How Caring for a Person Who Has Dementia Affects You

Emotional Reactions

Anger Embarrassment Helplessness Guilt Laughter, Love, and Joy Grief Depression Isolation and Feeling Alone Worry Being Hopeful and Being Realistic

Mistreating the Person with Dementia Physical Reactions

Fatigue Illness

Sexuality

If Your Spouse Has Dementia If Your Impaired Parent Lives with You

The Future

You as a Spouse Alone

When the Person You Have Cared for Dies

13 Caring for Yourself

Take Time Out

Give Yourself a Present Friends Avoid Isolation

Find Additional Help If You Need It

Recognize the Warning Signs Counseling

Joining with Other Families: The Alzheimer’s Association

Support Groups Excuses

Advocacy

14 For Children and Teenagers 15 Financial and Legal Issues

Your Financial Assessment

Potential Expenses Potential Resources

Where to Look for the Forgetful Person’s Resources Legal Matters

16 Nursing Homes and Other Living Arrangements

Types of Living Arrangements Moving with the Person Who Has Dementia Finding a Nursing Home or Other Residential Care Setting

Paying for Care Guidelines for Selecting a Nursing Home or Other Residential Care Facility

Moving to a Nursing Home or Other Residential Care Facility Adjusting to a New Life

Visiting Your Own Adjustment

When Problems Occur in the Nursing Home or Other Residential Care Facility Sexual Issues in Nursing Homes or Other Care Facilities

17 Preventing or Delaying Cognitive Decline

Normal Changes

General Mental and Physical Health

Lifestyle Factors

Physical Exercise Diet

Potential Treatments and Cures

Mental Exercise Medications and Vitamins

Limiting Exposure to Toxic Chemicals

Aluminum

Head Injury

18 Brain Disorders and the Causes of Dementia

Mild Cognitive Impairment Dementia

Alcohol Abuse Associated Dementia Alzheimer Disease Cortical Basal Ganglionic Degeneration Depression The Frontotemporal Dementias HIV-AIDS Lewy Body Dementia Primary Progressive Aphasia Progressive Supranuclear Palsy Traumatic Brain Injury (TBI or Head Trauma) Vascular Dementia Young or Early Onset Dementia

Other Brain Disorders

Delirium Korsakoff Syndrome Stroke and Other Localized Brain Injury Transient Ischemic Attack

19 Research in Dementia

Understanding Research

Bogus Cures

Research in Vascular Dementia and Stroke Research in Alzheimer Disease

Structural Changes in the Brain Brain Cells Neuroplasticity Neurotransmitters Abnormal Proteins Protein Abnormalities within Brain Cells Nerve Growth Factors Transplants of Brain Tissue Drug Studies Metals Prions Immunological Defects Head Trauma

Epidemiology Down Syndrome Old Age Heredity Gender Neuropsychological Testing Brain Imaging Keeping Active The Effect of Acute Illness on Dementia Research into the Delivery of Services Protective Factors

Appendix 1. Using the Internet Appendix 2. Organizations Index

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