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Index
Cover Page Title Page Copyright Page Table of Contents INTRODUCTION CHAPTER 1 In Shock
I'm Stunned... What is Happening to Me? Common Reactions Common Sense Help for Getting through the First 48 Hours
CHAPTER 2 Get Acquainted with Your Disease and Its Treatment
Why Do You Need to Know Basic Facts about Your Condition and Its Treatment? How Much Information Do You Need? Taking the Basic Approach Taking the Comprehensive Approach Judging the Information behind the Answers A Short Note about the Internet
CHAPTER 3 Involve Others
Telling Others Involving Families Getting a Little Help from Friends and Family
CHAPTER 4 Find the Right Doctors and Hospitals
Find Out More about Your Doctor or Not? Common Questions Ideas from Physicians about Finding the Right Doctors Six Things That Doctors Want Patients to Know about Doctors Your Strategy for Finding the Right Doctor Are You Choosing among Hospitals?
CHAPTER 5 Gather Expert Opinions about Your Diagnosis and Treatment
Why Should I Consider Seeking Additional Opinions? Under What Circumstances Should I Definitely Seek Additional Expert Opinions? How Should I Approach Gathering Expert Opinions? How Do I Tell My Doctor I Want to Get Another Opinion? How Do I Actually Go about Getting Additional Opinions? How Do I Make Sense of What I Learn?
CHAPTER 6 Get Timely Care
A Few Facts You Should Know What Scheduling Staff and Physicians Say about Urgent Consultations and Taking on New Patients Making Appointments: What Do You Say? Taking along a Partner The Right Information about You at the Right Place at the Right Time Now Is the Time to Learn a Little about Privacy and Informed Consent
CHAPTER 7 What Will I Do about Work?
To Work or Not to Work? How Can My Employer Be Helpful? Advice about Maximizing the Benefits of Your Benefits How Will My Co-workers Be Affected by My Condition?
CHAPTER 8 Pay for Care
Three Things You Need to Know about Your Health Insurance Right Now Rules of Thumb for Using Your Health Plan Taking Care of Business
CHAPTER 9 Find a Little Relief
Maintain a Routine Seek Distraction Spend Time with Friends Relax Physically Read and Write Explore or Affirm Spirituality Talk to Others Facing a Similar Challenge Join a Support Group Make Use of Complementary Medicine Seek Counseling What about Family Support?
CHAPTER 10 Take Your Next Steps
Want to Make God Laugh? Tell Him Your Plan How Do I Make Decisions about Treatment? What Do You Need to Be Able to Function? Thoughts on How to Keep Moving Reflections on Taking the Next Steps
APPENDICES
APPENDIX A Digging Deeper: A Guide to Greater Expertise
What If I Only Want the Basics? That's a Good Start, but I Need to Know More Top-Ranked Health Web Sites
APPENDIX B Books on Family and Illness
For Children and Teens For the Whole Family
APPENDIX C Find the Right Doctors and Hospitals
How Do I Start My Doctor Search? Choosing a Doctor The Minimal Approach: I'm Happy with My Referral but I Just Want to Check a Few Things... The Maximum Approach: The More Information, the Better Planning for Surgery Choosing a Hospital
APPENDIX D Clinical Trials and Second Opinion Services
Clinical Trials Second Opinion Services
APPENDIX E A Short Course on Medical Privacy APPENDIX F
A Guide to Health Professionals Out of Hospital In the Hospital
APPENDIX G Voluntary and Nonprofit Organizations
Telephone Help Lines Online Support: Chat Rooms, Discussion Groups, Message Boards Disease-Specific Organizations
APPENDIX H Financial Help and Estate Planning
Financial Planning Financial, Insurance, and Legal Aid Nonprofit Services Public Support (Medicare, Medicaid, Social Security Disability Insurance) Advance Directives, Living Wills, and Medical Power of Attorney
ACKNOWLEDGMENTS
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