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Index
Cover
Title Page
Copyright Page
ACKNOWLEDGMENTS
Dedication
CONTENTS
PART I: Introduction
1 Embarking on genetic journeys: Introduction
PART II: Genes in the Family
2 “Do I Want to know?”: Testing decisions
3 “Whom Should I Tell?”: Disclosures and Testing in Families
PART III: Genes in the Mind: Understanding Genetics
4 Genetic Tests as Rorschachs: Questions of “Why Me?”
5 “Am I My Genes?”: Genetic Identities
6 “Lightening Doesn’t Strike Twice”: Myths and Misunderstandings about Genetics
PART IV: Genes in the Clinic
7 “What Should I Do about My Genes?”: Deciding on Treatment
8 “Passing it On?”: Reproductive Choices
9 “There’s Only Privacy If You Make It”: Problems with Privacy and Insurance
PART V: Genes in the Wider World
10 “Keep it in the Family?”: Other Disclosures Beyond Kin
11 “Crossing Over”: Entering Genetic Communities
12 “Testing Everyone?”: Gene Politics
PART VI: Conclusions
13 Genes in Everyday Life
Notes
Appendix A Genetic Testing 101
Appendix B Sample Questions from Semi-Structured Interviews
Appendix C Additional Details Concerning Methods
Index
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