Table of Contents

1. Cover
2. Title
3. Copyright
4. Introduction
   1. I.1. Questions on which our study is based
   2. I.2. Objectives and contributions of this book
   3. I.3. Toward medical ethics
5. 1: The Emergence of Medical Information in the Face of Personal and Societal Ethical Challenges
   1. 1.1. An information-consuming society
   2. 1.2. e-Health, m-health, the Quantified Self and Big Data
   3. 1.3. Medical secrecy in the face of the computerization of healthcare data
   4. 1.4. Cultural evolution of mentalities surrounding legitimacy of information
   5. 1.5. Processing of personal data in law
6. 2: Ethical Modeling: From the Design to the Use of an Information System
   1. 2.1. Info-ethics: data on practical wisdom
   2. 2.2. Identification of method used to develop the ethical analysis model
   3. 2.3. Development of the ethical analysis space
   4. 2.4. Presentation of the ethical model
7. 3: Uses of This Ethical Model
   1. 3.1. Implementing the ethical model
   2. 3.2. Presentation of the study’s questionnaires
   3. 3.3. Necessary environmental changes for healthcare information systems: recommendations and actions
   4. 3.4. Creating an ethical charter on the “ideal” computational tool for a healthcare establishment
8. 4: Ethics-Oriented Personalized Medicine
   1. 4.1. The evolution of society toward an ethical ideal based on information
   2. 4.2. The doctor–patient–IS triangulation
   3. 4.3. Ethical use of an information system in healthcare
   4. 4.4. Ethics-oriented personalized medicine
   5. 4.5. Tool for the establishment and constant improvement of information systems for ethical practice in hospitals
9. Conclusions
10. Appendix 1: Classification of the Justifications in terms of the Different Real-world Environmental Parameters and Fundamental Ethical Principles pertaining to the Major Objectives of an IS in Healthcare
11. Appendix 2: Questionnaire 1: Designed to Analyze the Perception of Actors in Oncology about the Primary Objectives of an IS in Healthcare
12. Appendix 3: Questionnaire 1′: Designed to Analyze Healthcare Users’ Perceptions of the Main Objectives of an IS in Healthcare
13. Appendix 4: Questionnaire 2: Designed to Study the Realization and Characteristics of the IS Tool, to be used by the Designer of the IS and to the “Internal” Users
14. Appendix 5: Questionnaire 3: Designed to Analyze the Methods and Tools Put in Place to Enable the IS to Work
15. Appendix 6: Environmental Parameters of the Knowledge Pyramid
16. Bibliography
17. Index
18. End User License Agreement

Guide

1. Cover
2. Table of Contents
3. Begin Reading

List of Tables

1. 2: Ethical Modeling: From the Design to the Use of an Information System
   1. Table 2.1. Support on which analysis questionnaires are based
   2. Table 2.2. Model of ethical analysis
   3. Table 2.3. Interactions between the dimensions of ethical modeling
   4. Table 2.4. Environmental parameters of the infosphere
   5. Table 2.5. Structuring of pyramid of knowledge
2. 3: Uses of This Ethical Model
   1. Table 3.1. Justifications of the purposes, fundamental principles and underlying social values to the main aims of a healthcare information system
   2. Table 3.2. Justifications of the limitations, fundamental principles and underlying social values of the main aims of a healthcare information system
   3. Table 3.3. Distribution of the justification in the ethical cube of acceptable contingency
   4. Table 3.4. Proportion of real environmental parameters within the fundamental ethical principles
   5. Table 3.5. Advantages and disadvantages of single- or multi-developer approaches
   6. Table 3.6. Recommendations for the structural and technological domain
   7. Table 3.7. Recommendations for the strategic and methodological domain
   8. Table 3.8. Recommendations for the organizational and legislative domain
   9. Table 3.9. Recommendations for the relational and cultural domain
   10. Table 3.10. Ethical charter on the aims surrounding the creation, implementation and use of a healthcare information system
3. 4: Ethics-Oriented Personalized Medicine
   1. Table 4.1. Components characterizing the environment surrounding knowledge
   2. Table 4.2. Structure of knowledge pyramid
   3. Table 4.3. Strategic deployment: giving meaning and goals
   4. Table 4.4. Structure and composition of the three dashboards
   5. Table 4.5. Representation of the strategic dashboard – visualization. For a color version of the table, see www.iste.co.uk/beranger/ethics.com
   6. Table 4.6. Representation of the “tactical” dashboard – intervention. For a color version of the table, see www.iste.co.uk/beranger/ethics.com
   7. Table 4.7. Representation of operational dashboard – control. For a color version of the table, see www.iste.co.uk/beranger/ethics.com
   8. Table 4.8. Intrahospital coordination and strategic planning
4. Appendix 1: Classification of the Justifications in terms of the Different Real-world Environmental Parameters and Fundamental Ethical Principles pertaining to the Major Objectives of an IS in Healthcare
   1. Table A1.1. Justifications of the purposes of the major objectives of an IS in healthcare in terms of the real-world environmental parameters
   2. Table A1.2. Justifications of the limitations of the major objectives of an IS in healthcare in terms of the real-world environmental parameters
5. Appendix 2: Questionnaire 1: Designed to Analyze the Perception of Actors in Oncology about the Primary Objectives of an IS in Healthcare
   1. Table A2.1. Questionnaire 1, designed to analyze the perception of actors in oncology about the primary objectives of an IS in healthcare
6. Appendix 3: Questionnaire 1′: Designed to Analyze Healthcare Users’ Perceptions of the Main Objectives of an IS in Healthcare
   1. Table A3.1. Questionnaire 1′, designed to analyze healthcare users’ perceptions of the main objectives of an IS in healthcare
7. Appendix 4: Questionnaire 2: Designed to Study the Realization and Characteristics of the IS Tool, to be used by the Designer of the IS and to the “Internal” Users
   1. Table A4.1. Questionnaire 2, designed to study the realization and characteristics of the IS tool, to be used by the designer of the IS and the “internal” users
8. Appendix 5: Questionnaire 3: Designed to Analyze the Methods and Tools Put in Place to Enable the IS to Work
   1. Table A5.1. Questionnaire 3, designed to analyze the methods and tools put in place to enable the IS to work
9. Appendix 6: Environmental Parameters of the Knowledge Pyramid
   1. Table A6.1. Environmental parameters of info-ethics
   2. Table A6.2. Environmental parameters of the computosphere

List of Illustrations

1. 2: Ethical Modeling: From the Design to the Use of an Information System
   1. Figure 2.1. Structural analogy between genetics and information
   2. Figure 2.2. Information systems and knowledge
   3. Figure 2.3. Developed information systems and knowledge
   4. Figure 2.4. Construction of an ethical event
   5. Figure 2.5. Ethical space
   6. Figure 2.6. Informative plan
   7. Figure 2.7. Ethical analysis space
   8. Figure 2.8. Ethical cube of an accepted contingency
   9. Figure 2.9. Conversion of data into practical wisdom in an ethical analysis space in the infosphere
   10. Figure 2.10. Nonaka’s model of organizational learning
   11. Figure 2.11. Ethical modeling of information system in the doctor–patient relationship. For a color version of the figure, see www.iste.co.uk/beranger/ethics.com
   12. Figure 2.12. Ethical modeling of information system in the doctor–patient relationship
   13. Figure 2.13. Transformation from alpha to omega via the neo-Platonic systemic ethical prism
   14. Figure 2.14. Flow of quantity of information from A to Ω
   15. Figure 2.15. Process of creation of practical wisdom via organizational intelligence
   16. Figure 2.16. Technico-ethical regulation of data
2. 3: Uses of This Ethical Model
   1. Figure 3.1. Geometric representations integrated within the sketch of the Vitruvian Man. For a color version of the figure, see www.iste.co.uk/beranger/ethics.zip
   2. Figure 3.2. Implementation structure of an information system
   3. Figure 3.3. Forces that characterize organization
3. 4: Ethics-Oriented Personalized Medicine
   1. Figure 4.1. Evolution of an information society using NICT
   2. Figure 4.2. Analysis of the knowledge pyramid via ethical modeling
   3. Figure 4.3. Triangulation of the doctor–patient–IS relationship
   4. Figure 4.4. Maxwell’s three-dimensional model
   5. Figure 4.5. Use of dashboards in the hospital organogram